Side Effects

I've CML and I'm on my 3rd oral drug from 2020.

I'm on Ponatinib and I've read it can cause lung issues, cough, wheeze etc.

Have you come across this with other patients? Cause it's pointless trying to discuss side effects with my consultant. He avoids answering and my GP will say...we know nothing about these specialized drugs. So basically I get past from pillar to post.

  • Hello Bikerbizzy and thanks for your post

    We have information here on Ponatinib and as you can see that one of the potential side effects can include developing a  cough or breathing problems. This could be due to infection, such as pneumonia or inflammation of the lungs (pneumonitis). This may happen in more than 10 in 100 people .

    We do not provide hospital services here so we can’t tell you what other peoples experiences of being on this drug are. Hopefully, some of our forum users may come along and share their experiences with you. You could also join Blood Cancer UK's community forum here

    I hope this helps. Give us a ring if you would like to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene