Worried about my mum

Hi

I'm really worried about my mum, her legs have swelled up really bad are hard to touch and shes struggling to walk and has been short of breath, doctors sent her for a scan her chest was fine but something showed up on her Ovaries. She's now been referred to the Gynecologist and is going on Thursday for more tests. I've stupidly googled the symptoms and all that's coming up is Ovarian Cancer. She has lost weight, not eating as much and the leg swelling is a cause for concern.

Is it still possible it's not Ovarian Cancer even if they find something on the test?

She's 77 did have a hysterectomy when she was younger but they left her Ovaries.

I'm so worried and my anxiety is on a major high as all google is telling me is its Ovarian Cancer.

Thank you 

Parents
  • Hello and thanks for your post,

    It is natural to worry when a close family member is going through different tests and you also don't know what to expect.

    Try if you can not to overthink it for now. It is not until the doctors have assessed your mum and done further tests that they can give their opinion as to the cause of her symptoms that you will both know any more.

    Google is so general and will not replace the information that the doctors will get from their assessment.

    It can be helpful for someone to go with your mum as there is often a lot of information to take on board.

    If at any stage you or your mum would like to ring and discuss any of this with one of the nurses on the helpline then you are very welcome to give us a ring.

    Our number is Freephone 0808 800 4040 and we are here Monday to Friday 9 am to 5 pm.

    All the best,

    Catherine

Reply
  • Hello and thanks for your post,

    It is natural to worry when a close family member is going through different tests and you also don't know what to expect.

    Try if you can not to overthink it for now. It is not until the doctors have assessed your mum and done further tests that they can give their opinion as to the cause of her symptoms that you will both know any more.

    Google is so general and will not replace the information that the doctors will get from their assessment.

    It can be helpful for someone to go with your mum as there is often a lot of information to take on board.

    If at any stage you or your mum would like to ring and discuss any of this with one of the nurses on the helpline then you are very welcome to give us a ring.

    Our number is Freephone 0808 800 4040 and we are here Monday to Friday 9 am to 5 pm.

    All the best,

    Catherine

Children
  • Thank you for your reply.

    Unfortunately they have found a mass and just by looking they can tell its possibly cancerous, is this 100%?

    I have so many questions...we now have to wait to make sure they can operate to remove it...what if they can't operate?

    I'm absolutely devastated.

    Many Thanks 

  • Hi Lulu,

    I am so sorry to hear this. With the benefit of experience, many consultants can identify cancer by the shape and texture of a lesion. However a biopsy is the only way to tell for certain, as this tests the cells for the disease. You will find it helpful to collaborate with your mum to draw up a list of questions, which concern both of you. Can you attend her appointments too? Most of us either don't take in all that the consultant has to say, or we forget about 80% of what is said by the time that we leave the hospital. I always make 2 copies of my questions. I take one and give my hubby the other. As I ask the questions, he writes down the replies. This had proven to be very helpful, when trying to deal with various medical terminologies.

    Please keep in touch and let us know how your mum gets on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Thank you for your reply.

    I'm just so worried if they don't operate will they just leave her? Her legs have swelled up due to the mass blocking her lymph nodes, so she's really struggling to get around.

    My sister and dad have been going with her so far.

    I just can't see any hope at the moment and have a fear of the unknown.

    Thank you

    Xx

  • Hi LuLu,

    It might be worth asking if it would help her to be referred to her local Lymphoedema Clinic. I'm not sure if she would need to have the mass removed first, or if they could help her straight away., but it's certainly worth asking the question. Try not to look too far ahead, as most cancers can be treated these days.


    Kind regards,

    Jolamine xx

  • Hello Lulu and thanks for your post.

    I see that you've been given some good advice by Jolamine.

    A very experienced doctor can usually advise if something looks suspicious of cancer. But sometimes further tests such as a biopsy may be needed to confirm this.

    Decisions about treatment are usually made by the local Multidisciplinary Team (MDT) which has a number of different sorts of specialists from different backgrounds involved in assessing and treating a particular condition.

    Do mention your mum’s swollen legs to her doctors so she can be assessed and treated.

    I know waiting when you are worried is stressful, but hopefully you'll  both know more soon Give us a ring if you want to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Kind regards,

    Celene

  • Thank you so much for your replies.

    The wait until Tuesday is agonising and my anxiety has massively increased. 

    They are aware of her swollen legs and said they will go down once they operate, they have given her some cream in the meantime.

    I'm just still thinking of all the what ifs and if it's spread etc.

    She is very tired all the time and a little short of breath which concerns me too. 

    Thank you xx

  • Hi Lulu,

    It is good news that they say that they can operate and that her legs will go down after this. Try to place your faith in your Mum's care team, as they will do all that they can to pull her through.

     Please keep in touch and let us know how things go on Tuesday. We are always here for you.

    Kind regards,

    Jolamine xx

  • Thank you so much.

    I'm sure they wouldn't of said they could operate if they decide not to?

    My mum has told them she wants the operation so fingers crossed.

    The meeting is Monday and my mum will get a phone call on Tuesday.

    I will do and hopefully the symptoms she has now will get better.

    I certainly will and thank you so much for your support 

    Thank you xx

  • Hi just an update, so they do want to operate because of the symptoms she is getting so my mum has an appointment with the consultant on Friday then needs to see the Anethetist to make sure she is healthy enough, so now more waiting.

    Will just be glad when we know for definite! The waiting is awful.

    Xx

  • Hi luLu,

    Thank you for the update.

    I am glad to hear that surgery can go ahead for your mum. It is normal for anyone undergoing surgery to have a pre-op check, before they go for an operation. This is to ensure that the patient is fit enough to have the operation and the anaesthetic. I am sure that you must both feel greatly relieved to know that this can go ahead and I hope that it won't be long before your mum can have the operation. I hope that this will alleviate all her other symptoms too.

    Please keep in touch and let us know how she gets on. We are always here for you.

    Kind regards,

    Jolamine xx