Oncotype DX - Score 16

Hi,

I was recently diagnosed with stage 2 breast cancer at 42, I have had my lumpectomy and just finishing my 4 weeks of radio. One more blast!

I had to push a little to get the Oncotype DX test, because of family history, my sister 44 unfortunately passed 3 years ago with TNBC and my mum was diagnosed with breast cancer 7 years ago. Mum is doing super and no signs of recurrence.

I have had genetic testing and it came back negative, my cancer is ER+ HER-, so a very different to my sisters. I was my sister main carer during her illness, she went through chemo, surgery followed by trail for immunotherapy.

My oncologist put my case forward at the MDT meeting for the test and he said he would be shocked if it came back higher then 10, well now it came back at 16. My recent appointment he has said it is up to me should I wish to have chemo. I have felt a bit sick cause trying to weigh up the chemo versus the small percent it says it will benefit me 2%. My sister had a terrible time with the chemo and to be honestly emotional and physically not sure I am strong enough. 

Honestly people keep throwing stats and all becoming to confusing, also hard when one some are including pre and post menopausal.

chemo or not, live with the possibility it comes back and then think would that chemo have stopped this.

but no one will give you a straight answer cause they don’t have one!

  • Hello and thanks for your post

    I'm sorry to read about your family history of breast cancer.

    Making a decision on whether to have chemotherapy when it has been explained to you that only 2 people in 100 would benefit is difficult. No one can say if you will be the one who may benefit. There also isn't a way to forecast who will have troublesome side effects from chemotherapy. This is why decisions like this are so difficult and a lot of people struggle with them.

    Many people experience some degree of fretfulness about decision making and inevitably, there is the possibility of regretting whatever you decide. I think your own attitude to having cancer needs to be taken into account, by which I mean how comfortable you will be in the future putting it behind you. 

    Some people worry a lot about their cancer coming back and going forward, they find the idea of having more treatment reassuring. Others are able to focus on the odds being in their favour and don't feel the additional benefit is offset by the palaver and possible side effects of more treatment. So it may be worth thinking about your mental and emotional approach to your diagnosis and risk in general. And do get in touch with your hospital team if it will help to talk things over with them again. 

    I am not sure if anyone else will come along and post. If not, you could try another online community on the Breast Cancer Now website. 

    I am not sure if it will help, but if you wanted to know more about chemotherapy in breast cancer, we have some more information about it on our website here.

    If you want to talk anything over, please do give us a call. Our number is Freephone 0808 800 4040 and the lines are open from 9-5, Mon-Fri. 

    Kind regards, 

     Celene