Breast Cancer HER2 positive & Oestrogen negative

Hi, 

I’ve recently been diagnosed for HER2 positive breast cancer. I’m 34 and start my chemotherapy next week. 

I have seen that most people have an operation before chemotherapy. However my oncologist have suggested chemo first. I have 6 sessions, and then surgery etc 

Has anyone else undergone their plan this way? 

Thanks ️ 

Parents
  • Hi,

    Sorry to hear you've recently been diagnosed. I'm sure you're still processing everything and juggling pre-treatment appointments. 

    I was HER2+ and hormone negative too, diagnosed at the same age, and was advised on chemo first. I was initially reluctant and confused as I wanted it removed immediately and hated the thought of it still there for five more months, however, HER 2 generally responds really well to the treatment, and as I could feel the lump shrinking each week, confirmed via scans too, reassured me it was working. By the time you have surgery you have been through the worst part, and your results after surgery can tell you how much of the tumour was destroyed. Depending on that outcome (either a complete pathological response- no cancer cells left, or partial response- some cancer cells still present) you will then be offered some targeted therapy for 9-12 more months, which is another HER2 targeted therapy to reduce reoccurrence, given usually every three weeks. 

    I had regular heart (echo) scans as some of the targeted treatment can cause some weakness, so they're regularly used to ensure that things are running smoothly. 

    Dr Liz O'Riordan is a great resource to follow on social media if you'd find it useful- one of her most recent videos has been on HER2 which you might find informative: https://www.youtube.com/watch?v=i4dHP1RebPo 

    There is also a Facebook group for women diagnosed under age 45. Please search 'younger breast cancer network' if you'd like some more support or to chat to others going and gone through treatment.

    Wishing you all the best for your treatment. It goes by very quickly. 

Reply
  • Hi,

    Sorry to hear you've recently been diagnosed. I'm sure you're still processing everything and juggling pre-treatment appointments. 

    I was HER2+ and hormone negative too, diagnosed at the same age, and was advised on chemo first. I was initially reluctant and confused as I wanted it removed immediately and hated the thought of it still there for five more months, however, HER 2 generally responds really well to the treatment, and as I could feel the lump shrinking each week, confirmed via scans too, reassured me it was working. By the time you have surgery you have been through the worst part, and your results after surgery can tell you how much of the tumour was destroyed. Depending on that outcome (either a complete pathological response- no cancer cells left, or partial response- some cancer cells still present) you will then be offered some targeted therapy for 9-12 more months, which is another HER2 targeted therapy to reduce reoccurrence, given usually every three weeks. 

    I had regular heart (echo) scans as some of the targeted treatment can cause some weakness, so they're regularly used to ensure that things are running smoothly. 

    Dr Liz O'Riordan is a great resource to follow on social media if you'd find it useful- one of her most recent videos has been on HER2 which you might find informative: https://www.youtube.com/watch?v=i4dHP1RebPo 

    There is also a Facebook group for women diagnosed under age 45. Please search 'younger breast cancer network' if you'd like some more support or to chat to others going and gone through treatment.

    Wishing you all the best for your treatment. It goes by very quickly. 

Children
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