Inconclusive results

I had a hysterectomy on the 19th Oct and have had results from the removal of complex ovarian cyst today. The consultant said it was inconclusive so he has referred me to another hospital specialising in my case to see if I require further surgery, removal of appendix, lymph nodes and fatty tissue. He said my cyst had ruptured during surgery so whatever it was may have spread. How can the results be inconclusive ? he said it wasn't cancer but not benign either. I'm confused. I've an appointment to go back in a couple of weeks when he hoped to have heard back from the other hospital to see if further treatment is needed. Is it unusual to have inconclusive? All the blood tests , scans were good and the surgery I thought was belt and braces to take it away because they couldn't call it being cancer. I just didn't expect to have further treatment, and thought hysterectomy would be the end. Is there any reading you can recommend? 

Thankyou

  • Hi June 06 and thanks for your post.

    I was sorry to learn of your situation, I imagine this is a worrying time for you.

    It sounds like your surgery was a bit more complicated because the cyst ruptured. When a cyst is removed it is sent to the pathology laboratory and is looked at closely by a histopathologist. However, sometimes the results can be inconclusive, meaning that the test has not produced a definitive result. This can happen for several reasons: There could have been a problem processing the sample, the sample didn’t contain enough of the affected tissue or the sample size was not large enough. It is good that the doctor has referred you to another hospital for a second opinion and hopefully, this will give you more clarity.

    It is confusing to be told that the cyst was neither cancerous nor benign and I am not really sure what your consultant means. When you have your appointment in a couple of weeks it will be worth asking what they meant by this. Without knowing what your exact situation is, it is hard to know what to recommend for you to read.

    You have a lot of uncertainty at the moment which must be difficult to live with, and unfortunately, until your consultant has heard back from the other hospital, no one can say whether or not you will need further treatment. And I am sure it feels like it is a long time to wait before you know more. I wondered what support you have, whether, you are able to talk to someone such as a friend or family about your concerns.

    You would also be welcome to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    I do hope you get some answers soon, take care

    Jemma

  • Hi jemma 

    Many thanks for your reply. I rang the secretary today for some clarification and a specialist nurse went through everything. The cyst was a borderline cyst which apparently is neither benign nor cancerous however ot does contain cells which could be dangerous. It is staged the same as ovarian cancer so everything has been sent to the other hospital to clarify and determine what, if any treatment is required.  She said when I should hear by which has managed some of the uncertainty. 

    Thanks again for your support. 

  • Hi June,

    I just wanted to say hello having seen your post. I'm in a similar situation to you - 3 weeks ago I had a complex ovarian cyst removed. I haven't had the results back yet, but like you mine burst during removal and the MRI pre-op had some signs of malignant and some signs of benign so could possibly be a borderline situation too. 

    I hptyou get some clarity soon - I'll be thinking of you :⁠-⁠) 

    Sunflowergirl x 

  • Hi Sunflowergirl

    Thankyou for your message , it is appreciated. I hope you have clarity soon too. I am disappointed I was not told about the rupture at the time so I could have been more prepared at my consultation 6 weeks later. The up side is after 6 weeks I feel well recovered and ready to get back to normal life.  Take your time with recovery, rest well and fingers crossed we hear as soon as possible what may be needed next. 

    June