Hi I’m a 57yr old female.
I had a right upper lobectomy in July 2018 due to NSCLC.
on my first post operative scan they found a 5mm nodule on left upper lobe.
Due to recovering from first surgery, it was decided a watch n wait surveillance was more appropriate. Iv had active surveillance since then where it had remained stable. I was told I’d be discharged if it was still stable on my last scan October 2022, but then told after the scan I’d be monitored for 2-3 further years with no explanation why.
Fast forward to August 2023 I had another scan early( instead of October) due to 3 bad chest infections and it had grown to 7mm and spiculated.
I was referred back to respiratory specialist for further tests but ended up in hospital with a spine infection.
The consultant treating me thought there could be a connection to my lung nodule/cancer so they treated my infection first, did further tests n ruled out connection, so I have only just seen my respiratory consultant in October.
My discharge papers say my lung tumour is 9mm / 181mm3 and a VDT OF 328 days. I don’t know what this means but would like to know
Consultant arranged breathing tests and PET-CT and gave me 2 options of referral straight to surgeon or biopsies under general anaesthetic ( due to tumour location)
seeing as there was a delay seeing a consultant due to hospitalisation with spine infection, I thought quickest possible way to treatment would be referral straight to surgeon.
I didn’t have a consultation with respiratory consultant about results of breathing tests or PET-CT so I’m unaware if there’s been any changes in size to previous scans.
I spoke to my lung nurse who explains that I may be suitable for surgery to remove this new tumour but obviously they won’t take the whole lobe, and due to its location around the bronchi it will be tricky to remove and may need adjuvant chemo to “mop up” any remaining cancer cells.
Obviously I’ll be grateful to be offered surgery as an option.
I had an appointment for 2 November, got cancelled and now seeing surgeon on 16 November
after having my first NSCLC I was told if there was a reoccurrence it would not be possible to operate but I’d have chemo or another treatment,
they’re not treating this as a reoccurrence but as a new primary due to fact it was present at time of first tumour and that it had remained stable for 5 years
i also have mild to moderate COPD
so my questions are :-
Is surgery an option or could I be seeing surgeon for biopsies to determine another treatment, as they haven’t said if this is likely to be the same type of cancer as before ?
if I have surgery, what are the risks to me ?
what is my likely prognosis, even with surgery considering this is second time ?
how will surgery impact my breathing afterwards ?
Is the surgeon likely to want a biopsy before they proceed with surgery?
because it hasn’t been graded yet ( due to no biopsy) I haven’t been given any answers to these questions when I asked them.
I know the surgeon would be the person to give me these answers, as best they can, but I’m so confused about what to do if given a choice of treatments due to risks, that I wouldn’t want to delay treatment by coming away to think it over. I’d prefer to have some idea now to make an informed decision without the rush or delay in getting treatment due to waiting times.
sorry this post is so long. I wanted to give you as much information as I could to help you understand my predicament.
I appreciate Iv only got 2 weeks to wait to ask them myself but iv wanted to know what will happen since I was told on 7th August and im 3 months down the line and no wiser
thank you in advance.