Medullary Thyroid Cancer

Hi. I wonder if you can help? I had half my thyroid removed in April because of a 2.2 cm tumour, which was eventually found to be a medullary cancer. Luckily it hadnt spread to my lymph nodes and calcitonin levels were found to be practically zero. I'm still waiting to discover whether or not I have the gene.

Blood tests have found that my half thyroid is functioning as hoped. However I am constantly hot and sweaty (whereas I have never been like this in my whole life), I feel exhausted or fatigued a lot of the time,  my joints ache, I have had 2 occasions where my head felt like it was going to explode and a severe dull ache travelled down both arms (both times were linked to emotionally charged situations), by the end of the day my neck feels swollen and choky and I have put on weight which I cannot shift despite exercising and eating a healthy diet. This is bothering me as I know I would feel more positive if, at the very least, I could control this weight issue. 

On certain days I feel so fed up and tearful about everything. Then other days I feel grateful that the tumour was removed.

Please do you have any information and advice on what I should or should not be doing to get myself back onto some sort of an even keel?

Many thanks for your anticipated help.

  • Hello Nahor91 and thanks for posting,

    I am sorry that you are having unexplained symptoms after having a hemi-thyroidectomy and that you have put on weight. I can understand why this is all getting you down. 

    I'm afraid I can't tell you why any of this is happening and all I can suggest is that you speak to your doctors and report all the things you are noticing.  You say that the blood tests indicate your remaining thyroid gland is working ok. I am not sure when these tests were done and if this is something that need to be revisited . There is no harm is asking for a review and I think you should tell them what has been going on so that these symptoms can be properly assessed and diagnosed. 

    I do hope you can get an appointment easily and that your doctors can give you some helpful advice.

    Feel free to give us a call if you want to talk anything over on Freephone 0808 800 4040, we are around from 9-5 weekdays. 

    Best wishes,

    Julia