Has anyone had experience with CA125 levels remaining very high? 

I was diagnosed with stage 3 low grade ovarian cancer last year, CA125 was 420. The levels rose throughout chemo and only dropped once, between surgery and chemo 1. At the end of active treatment they were 620 and now sit at 733, 8 months later. 

All visible disease was removed during surgery, and I have had 3 clear CTs since, and 1 clear PET. Most recent CT in March. I am now awaiting another CT due to the rise (most recent previous CA125 was December at the end of treatment scan) and just so disheartened and worried. Why does it never come down?! Why must it just rise? Have you heard of this happening when there is no visible disease? I wasn’t bothered when I’d had a clear scan but now I’m waiting another scan I am totally panicked.