Confused about additional scans

Hello, I have had a recent MRI scan related to another rare illness. In the scan it picked up several areas of concern wthin my Liver, Pancreas and Kidney.

I have since had a call from the surgeon regarding my Iver and Pancreas an he has said the areas in my Liver are benign which is a relief. The area within the Pancreas has a a cystic element which will Sheri be scanned in regular basis as I understand there is a possibility of this turning cancerous of which treatment is either difficult or not possible.

I then turn to my Kidney which showed a heterogeneously enhancing lesion at the upper pole of the left kidney which is just over 2.5cm. The enhancing mass is reported to be of concern due to renal cell carcinoma.

What I don’t understand and I have had no letter, phone call or consultation is that having contacted the Hospital myself I am now told I am booked in for a CT scan of the kidney. I thought and MRI scan showed more detail but there must be a specific reason for this.

The other really confusing thing is that when I spoke to the Surgeon regarding my Liver etc he also of course knew about  the Kidney but was surprised I had seen the report. I told him I had asked for them under the freedom of information act.

In his comments he said he could comment but it wouldn’t be right as it wasn’t his department, but that when someone had seen me, that department would more than likely speak to him again who in turn would speak to me about my Liver.

Well I was left very confused with the only knowledge of a further  scan of which I don’t understand and his comments which are baffling.

Are you Alex to comment? 
My apologies for the long text

Parents Reply Children
  • eus is an endoscopic ultrasound - thats what my gastroscopy was - sort of like an internal ultrasound with entry through the mouth (in my case) and they are able to biopsy at the same time. Sounds horrific but in reality with sedation you are not really aware what is happening.

  • Hi 

    I found it awful at first because they wanted to do it awake. 

    I had a panic attack and climbed off the table ,next thing I was on the ward.

    Yes as leni56 said and it's a really good way to get a proper look .

  • Hello,

    A EUS is a Endoscopic Ultrasound.

    This test combines ultrasound and endoscopy to look at your food pipe, stomach, pancreas and bile ducts.

    To do the test your doctor uses a long flexible tube called an endoscope. It has a tiny camera and light on the end and an ultrasound probe attached. The ultrasound scan uses high frequency sound waves to create a picture of the inside of your body. The doctor can take samples of abnormal areas (biopsy) during the test.

    I hope that this helps,

    Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Yours sincerely,

    Vanda

  • Thank you all for your replies. I have had many  endoscopic treatments for my illness ( Neurosarcoidosis) . It’s rare and causes may issues so I’m used to them, I’ve also had one for my stomach etc. 

    The concern raised from the scan was a heterogeneous enhancing mass in the upper pole of my kidney concerning a renal cell carcinoma. That’s all I can tell you at the moment.

    So grateful for your support as Sarcoidosis is a great mimicer of many diseases but on this occasion it isn’t the case.

    Many thanks to you all xxxx