Hello sunflowergirl and thanks for posting

I am sorry to hear you are needing to undergo some tests at the moment and appreciate you having some questions.

As your doctor has already explained to you ovarian cancer at your age is rare whilst ovarian cysts are common. In most cases ovarian cysts resolve by themselves over time but if cysts are particularly large or causing symptoms they may decide to remove them.

It sounds like your doctor is being thorough by referring you urgently to gynaecology alongside some urgent bloods. This usually where they check the ca125 that the specialist doctor will then use alongside your age and any features seen on the ultrasound of the cyst to calculate a risk of malignancy index (RMI) to guide what needs to happen next.

At your appointment the gynaecologist is likely to assess you and take a medical history from you asking you questions about your general health and any symptoms you may be experiencing. They may repeat the ultrasound but this won't always be needed or maybe suggested at a later date. They hopefully will be able to give you some more understanding about what this means for you and what needs to happen next in terms of whether you need more tests, treatment or follow up.

Try and take things one step at a time for now and not over think the situation until you know more. There is more information about surgery to remove ovarian cysts on the NHS pages here but remember this may not be needed.

Do ask any questions you have at your appointment and share any concerns you have with them.

Best wishes

Naomi

Thank you for the information :) x

Hello again - I wanted to update on what has happened since I posted previously. I had an appointment to discuss the results of bloods and scans. 

I have a 14cm cyst which is being described as 'complex' - the consultant said it had some concerning features - I think he said septations? I have got an MRI booked in and more blood tests to look for tumour markers ( so far bloods all ok). This will apparently help decide if benign or malignant. After saying it had these concerning features, he did end by saying it is still unlikely at my age (32) and that he wasn't especially worried.

Any info/advice much appreciated about what I can expect going forward. I didn't ask at the time, but what does it mean by septations? Does a large cyst lean towards having to have it removed by open means rather than keyhole? 

Hi its good to hear that so far your bloods are not showing anything when I had my CA125 bloods done the test was elevated ,I hope this is a good sign for you and bloods stay all fine ,hopefully someone will have some info on how they deal with a large cyst ,keep in touch .

Hi Sunflowergirl123  I hope you’re feeling ok and not too anxious. I am in a similar situation to you but my ca125 was raised. I have a 9cm cyst and have been told I will need surgery to have it removed. I had an MRI followed by a CT scan. I’m not saying this exactly what will happen to you, just sharing the route I’ve been down so far.

wishing you all the best and here if you ever need someone to talk to x

Hi Sunflowergirl123  I hope you’re feeling ok and not too anxious. I am in a similar situation to you but my ca125 was raised. I have a 9cm cyst and have been told I will need surgery to have it removed. I had an MRI followed by a CT scan. I’m not saying this exactly what will happen to you, just sharing the route I’ve been down so far.

wishing you all the best and here if you ever need someone to talk to x