Swelling in the Legs

I am a 52 year old male. I am very overweight, and I have severe swelling in my legs.

A number of years ago, I damaged a tendon in my right leg. Not realising the extent of the injury, I just hoped it would get better. I began to live with the pain, but the injury slowly started to slow me down, until I was soon living a very inactive life.

I had also got rotator cuff impingements in both shoulders, so this affected my overall flexibility and activity. Pain was now a new partner in my life. 

Covid came along and shut down my business and my marriage started to go through difficulties. I then had to become the primary carer to my 84 year old mother.

This soon led to threats of home repossession and the successful life I had know before was changed completely. 

I now have severe swelling in both legs from the shins to the feet. The front of the shins have unsightly skin damage. I have been to many doctors and specialists and I have to say, I am losing confidence in the medical sector.

Some say, I have eczema, others say I have psoriasis, more psioratic arthritis. One specialist said I was a ‘dead man walking’ in a disturbingly jovial tone and said it was all due to my weight.

One consultant referred me to another consultant for an injection under ultrasound that would fix everything. I went to the referred consultant and she heeled up my leg, put it on the ultrasound and at the last moment said that she had to ‘call it off’ that if she gave me this injection, that it would do more damage than good. When I asked her what was to be done, she just shrugged and said ‘ go back to your consultant’, then snapped her glows off and started talking to her colleagues. I couldnt believe the rudeness and the lack of professionalism, so I left before I said something I’d regret.

When I DID go back to my original consultant he started asking me for explanations as to why she had called off administering the injection. I somewhat exasperatedly told him that I assumed they had spoken, to which he mumbled something incoherent. Eventually he had me fitted for expensive, but mostly ineffective orthotics.

Another specialist in joint pain that I went to recently  recommended a specialised diet that when printed out just said ‘don’t consume ANYTHING with ANY sugar in it, potatoes, rice, pasta, wheat,  bread, milk, alcohol, fruit or veg’. No, I’m neither joking or exaggerating - ALL FRUIT OR VEG. I put it to him that retain veg must surely be ok, broccoli or red peppers meat ..? But he was adamant - protein and fat only, which to be fair I have seen in other diets and recommendations before. 

This doctor suggested that if I failed in this diet, there could possibly be some kind of liposuction operation, which I don’t want to consider. He also said the skin condition can not be fixed - that i should just live with it. I mentioned to him that friends and neighbours have got injections from him that gave them great relief for joint pain - he said that they wouldn’t do me any good and redirected me to the weight issue and the diet - I ttied to make the point that these diets (which I have tried and had some success with over the years) often tend to result in rapid weight gain once they are stopped. He just said ‘not this one’ and looked at his watch. He then directed me out to his receptionist whogave me a bill for €200.

NO ONE has been able to explain the swelling in my legs or how to ease it. NO ONE has been able to give me any form of pain treatment.

Every medical consultant I have gone to has cost over €200.

The pain is now affecting my mind. I’m not sure how much longer I can take the pain, the recriminating looks or the condescending chuckles about mental rigour and losing weight.

I’m beginning to feel that the medical community see an overweight person and confuse our weight gain with some kind of character weakness that requires us to be punished or have pain treatment withheld - like airlines charging more for seats to those who are overweight.

I was once a slim, active man. I want to get better, and I am doing what I can to reduce my weight in the circumstances that I am in. But I need pain relief. It can take a year and a half for me to lose the weight and I can’t believe that there is not SOME kind of joint injection that i could be given. And even if I DO manage to lose something like 70 kilos, is my injury going to disappear? Slim people don’t get ankle injuries? I mean, I’m happy to follow the science, but I’m a believer in logic too.

I’m also worried that the swelling in my legs could be an indicator of cancer, but as far as I’m aware, none of the doctors looked into that. The consultants especially seem to focus more on sending in a junior physio / doctor and they just talk about weight management. THERE IS AN INJURY THERE, HOW CAN THAT NOT BE ADDRESSED!? I’m too fat - therefore I don’t deserve to have valuable injections wasted on me? I even enquired about stem cell treatment and they actually laughed at me as if I had mentioned something I had “just seen on the telly”.

Re-reading all of the above, I know that this just looks like a massive rant where everyone is at fault but me. Sorry if it comes across that way, it’s just that I can feel youth ebbing away and life along with it.

If somebody could advise me on :

- is there any dermatological solution to the skin issue on my shins (it looks like a dark purple burn and the last consultant said it could well turn into ulcers in later life - IF I LIVE THAT LONG)

-practical Edema / Lymphodema recognition and treatment
- pain management solutions / suggestions for damaged ankles

 I’d be very grateful.

  • Hello JJ4 and thank you for your post

    I am sorry to hear about the symptoms you have an appreciate how debilitating these must be for you. It must be very disappointing and frustrating for you to have seen so many health professionals with regards to your ailments and still feeling you are not really getting anywhere.

    I'm afraid as nurses we cannot say what the matter is and we always advise people to revisit their GP with ongoing symptoms. The doctor should be able to reassess you and arrange the most appropriate tests and referrals. Symptoms can be caused by lots of different things and sometimes it is a process of elimination but most of the time the cause won't be anything as serious as a cancer.

    From what you have said it sound like the injury's you sustained in the past have played a part in you becoming less active which has also led to weight gain. Unfortunately inactivity and excess weight can cause oedema or lymphoedema (swelling to the lower legs and feet caused by damage or a blockage to the lymphatic system). 

    There is more information about lymphoedema here. When lymphoedema is left untreated it often causes skin changes that are prone to becoming dry, hard and breaking down. The main treatments for lymphoedema involve a combination of compression garments or bandaging, skincare, exercise and lymphatic massage. Losing weight is also of great benefit for people who are overweight.

    It is worth asking if your doctor can refer you to a lymphoedema service for an assessment in case the swelling is the result of this condition. Getting on top of lymphoedema is important and whilst this is a chronic (long term) condition with the right treatment it can be well controlled. 

    There is also the lymphoedema support network here that may be worth taking a look at including some useful information about skincare and using moisturisers daily including to wash your legs with.

    Do also discuss the pain with your doctor to see what other things may help with this including physiotherapy. Injections into joints when lymphoedema is present is best avoided as this could cause more harm than good but this needs to be explained if and when this is the case with an individual.

    I do hope you get the help you need so that things start to get better for you.

    Best wishes

    Naomi

  • Naomi,

    Thank you very much for taking the time to write such a considered response. Your tips and links re lymphedema are very practical and helpful. I am currently (mostly ) sticking to the diet set by the most recent specialist and I am focusing on weight reduction. My next step will be some form of manageable exercise. I will read your links on lymphedema and investigate those options as they seem very practical.  

    Thank you also for taking the time to go through my case so thoroughly and compassionately; it’s the first time I feel I’ve been given a roadmap of some kind. Than you especially for explaining how joint injections and lymphedema are not the best mix. Had someone just explained that to me along the way, it would have been very helpful. 

    Best of luck to you Naomi and good health. 

    JJ

  • Hi I can't offer any medical advice but I hope there's a solution to your problem at just 52 years old you still have a lot of living to do ,I would stick with the diet try to do a bit of gentle exercise no matter how difficult even just raising your legs off the floor and gradually build it up ,I know it will be painful but having had  really painful arthritis in my neck I know what pain is, the first time I was told to start doing exercises I thought I can't do this its much too painful and it certainly was but eventually I started to make a little progress and then a bit more ,I still have the problem but instead of thinking I can't move it I realised that exercise was the best thing for it ,anyway keep in touch with us on here and let us know how you get on ,Best Wishes .

  • Dear Jenny, that’s so nice of you to say. Thank you so much. 
    Arthritis is just such a cross to carry.

    How is your arthritis now? I hope you get some relief from it. I got to such a stage of desperation with the pain (it’s not that it’s unbearable, just bad and never-ending) that I ended up buying pain patches I saw on Instagram. Dunno if you’ve heard of them - KAILO flex. 

    I started wearing them yesterday. I can’t say that they’re eliminating my pain, but they’re reducing it slightly I think. Or maybe I’m telling myself that. 

    They're not pharmaceutical patches - they CLAIM to stop pain signals to the brain through some energy mumbo-jumbo. You can Google it. 

    if they work, I’ll add more feedback here; you never know… MIGHT help with your neck. The jury’s out for the minute. They haven’t eliminated my pain, but like I said; I think there’s a reduction. 

    Thank you again for your lovely message Jenny.

     Mind yourself. 
    JJ