Negative lymph nodes

Hi

My husband saw the Consultant 20th June for throat problems . On examination, an irregular mass on the left base of tongue reaching up to the midline. The consultant sent him for an scans MRI and CT on the 21st, and pre- biopsy testing on 24th..so, like a whirlwind. He has had his panedoscopy. On the consultants letter we received this morning it said my husband has been upgraded onto cancer pathway, there were also  two Macmillan nurses brought in on his appointment.,..so very worried, but, in the letter it did say neck negative for lymph nodes....so, does that mean cancer is not now suspected?

Thank you.

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  • Hello and thanks for posting,

    I can appreciate that it is a stressful time for you both at the moment.

    There are usually various different tests used to obtain enough detailed clinical information to make a diagnosis. Being on the cancer pathway does mean that cancer is suspected, hence all the investigations so far. Part of thoroughly assessing someone, is to assess whether or not cancer is detected in the neck lymph nodes. This is part of the process of 'staging' a cancer, as in knowing the extent (size and spread) of the cancer from its original site (the primary). This information helps the doctors plan the most appropriate treatment plan once all the clinical information is available to them. 

    I hope this has been of help, and that you get to find out more soon,

    Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Yours sincerely,

    Vanda

  • So I had my mri today and was told Il hear from the doctor in 2weeks about results but as Iv gone on my patient portal it says results pending 6th august surely that’s a long time to wait for results….

  • Hello Sweetcheeks5 and thanks for getting back to us,

    Some scans and tests are flagged as being urgent and some are routine,  I think with either the amount of time if takes for the results to be reported can depend on the capacity in the NHS. I'm afraid I don't know when your MRI results will come back - I am not really sure what the pending date means in your patient portal. It may be that you will hear from the doctor in 2 weeks as you were told.

    Waiting for results is inevitably stressful, perhaps give it the 2 weeks that was mentioned and if you haven't heard by then try and chase it up. 

    For now, try not to dwell on the results and do what works for you to distract yourself. 

    Best wishes,

    Julia 

  • Thank you for the reply I think I was sent under routine protocol type scan when I asked the receptionist. I’m just really nervous on the finds if anything is found and don’t really believe or finding it hard to believe that if it was serious the guy taking the pictures would notify or mark on some kind of indication that it needs to be looked at urgently.

  • I'm so sorry you have such a worry, fingers tightly crossed for you...it's a club no one wants to be in is t it? Xx ️

  • Yes deffo how is your husband did you get results back x

  • Not yet, they said if you haven't heard anything in two weeks to call them...xx 

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