Hello Bev, and thank you for updating us.

I know it is such a worrying time waiting for answers, but it is difficult to say what happens next.

Once you have been reviewed by the gynaecology team you will know more.

Appointments to see a specialist are not always within 31 days, this is a guideline that post covid is not always able to happen. But the appointment should come through soon.

Take care

Sarah.

Hi Sarah ,i recieved appointment four days after pelvic scan ,on the internet it says 31 days which ftom the letter to the appointnent is 31 days reading on the overcome website .i dont know if its ovarian or not i have fibroids already .just wondering if they have found something else on the scan .all symptoms well bloating after eating and before .cant eat much .only symptoms i dont have is peeing alot and back ache feel very much in the dark .even got All blood redults from my doctor to see if i could work out the ca125 ,i cant  imposdible to work out .guess i will know monday wondering if they will say ct scan .ive had ca125 and pelvic scan so far my anxirty and fibromialgia is  all over the place .

Hi Sarah ,i recieved appointment four days after pelvic scan ,on the internet it says 31 days which ftom the letter to the appointnent is 31 days reading on the overcome website .i dont know if its ovarian or not i have fibroids already .just wondering if they have found something else on the scan .all symptoms well bloating after eating and before .cant eat much .only symptoms i dont have is peeing alot and back ache feel very much in the dark .even got All blood redults from my doctor to see if i could work out the ca125 ,i cant  imposdible to work out .guess i will know monday wondering if they will say ct scan .ive had ca125 and pelvic scan so far my anxirty and fibromialgia is  all over the place .

If you ring your GP Surgery I'm sure they'd tell you your ca125 result but if its high you might worry more before you attend your appointment although a high ca125 could actually be because of Fibroids like mine was .

Hi jenny .my ca125 is high .i dont know what my number . Is though .it all started 2nd may had cai25 five dsys after my result  after that i had pelvic ultra  sound .four days ater  on the 24th may got letter for appointment  monday the 26th june . No idea if its cancer or not as i already have fibroids .will i get a ct scan .and if i did have csncer would i have been seen earlier than 31 days  appologise for my writting lost my glasses squinting as i write .

Hi mine was a little different to yours I had an elevated ca125  ,I got an appointment at the hospital within 2 weeks but I didn't know what to expect as it didn't say ,when I arrived I had the ultrasound then I was taken to another room where I was informed they would do a Hysteroscopy there and then ,I was a bit shocked at it happening so fast but ,the staff were all amazing and reassuring ,I was so scared at what they would find but after it was over they said they couldn't see anything nasty ,they removed a polyp / fibroid and some biopsies which I had to wait for around 2 weeks to be absolutely certain all was good but to be fair they would tell you there and then if they find anything so I felt so relieved ,then I got a letter confirming the biopsies and polyp etc were all fine ,so I think you will probs have a hysteroscopy .

Is that a transvaginal ? I refused it at pelvic ultra sound ,its too psunful i had one when i was diagnosed with fibroids .will they do a ct scan ?

Yes a transvaginal ultrasound .I didn't have a ct scan just the ultrasound and hysteroscopy but its not to say it will be the same for you ,If you have any more queries just ask someone else might have a different experience ,let us know how you get on someone is always here to help x

Hello Bev and thanks for getting back to us, 

I don't think it is possible to work out what they will want to do or what they will tell you at your appointment but I can understand why your mind is full of it, I think it is human nature to try and figure out anything like this. 

As you say, you will know more on Monday so for now it is probably a good idea to try and distract yourself in whatever way works best for you so you get through the weekend without your nerves being too stretched- easier said than done I know. 

Try and keep an open mind and take things one step at a time.

Wishing you the best,

Julia

Hi Jenny, hope you don’t mind me jumping in, I’m currently going through something similar as I have raised ca125 but all that was found I’m my TV ultrasound was a very small fibroid (1.5cm) and a polyp. I was curious if you know what size yours was?

Did you have a repeat ca125 test to see if levels are trending up or down? I have been having repeats now for months fluctuating up and down.

I have also had a CT scan which came back normal but my ca125 is still not within the normal range. 

Hi I don't mind at all ,I've no idea what size anything was they never said I also had biopsies taken and they were ok as well ,I had this done last October and I've not had anymore blood tests or anything ,to be honest I was just so glad to know it was nothing to worry about it never entered my head lol they did say if I had anymore problems just to get in touch but I've had no more problems since .

Thanks so much for replying, I’m so glad to hear you haven’t had any further problems. That’s reassuring. I also had biopsies taken during hysteroscopy and they came back fine. Have had two clear ultrasounds and a clear CT but my ca125 is staying at 50 after 4 tests over 9 months so my gynae currently doesn’t know why mines is elevated but has suggested possible endometriosis. 

That's very possible ,I've heard that before on here .