Not sure what to ask the specialist

It's a bit of a long tale, so I'll try to cut to the chase. Six weeks ago, my dad was rushed into hospital with abdominal pain. They identified holes in his bowel and a blockage so he was taken for emergency surgery where they removed the offending bowel and gave an ileostomy. Fast forward to yesterday (he's still in hospital) and the specialist said to my dad "has anyone explained what caused this?" (to which this answer was no) and then she told him that it was cancer. She said they they had removed it and it had been sent away for tests but results aren't back yet.

My dad seems fine with that, but I'm feeling a bit bewildered that this has only just been mentioned 6 weeks on. I suppose I'm here to ask you what questions should we be asking?

What are the tests that they have sent it for? Why test it if its removed? Is 6 weeks a normal wait for results like this?

I'm concerned that the cancer may be somewhere else and not just the part they've removed. Is it possible to tell that?

My dad isn't a good listener and may not have absorbed all the information he was told, but I asked four weeks ago to speak to a specialist to understand what was happening, and I'm still waiting - so me attempting to intervene isn't effective... my best hope is me writing down questions for dad to give her, but I don't know where to start.

  • Hi Merlotdog and thanks for posting.

    It sounds like a difficult time for you and your family at the moment.

    I don't know why the possibility of cancer has only been mentioned six weeks after your dad's surgery, and you will have lots of questions you want to ask. It is a good idea to write questions down.  You could also ask your dad if you can be present when he speaks to the doctor, or he could give you permission to speak to them. 

    The tests on the part of the bowel that was removed is to find out the stage (how big the cancer is and whether it has spread) and grade (how different the cells look to normal cells) of the cancer.  This will help the team who is caring for him decide what sort of treatment he may need, and which would be the most effective.

    I'm not sure if this has happened already but your dad may have some scans which can look at what is happening in other parts of his body.  This will give his care team more information too.

    Sometimes results do take six weeks or more.  We are hearing from many people that this is becoming normal.  When you are waiting this can feel like a long time but hopefully they will be back very soon.

    Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care,

    Rachel