FLOT

I started FLOT yesterday. I have T3 N1 cancer in my stomach, bottom of my oesophagus, and the junction between the two. 
I've not really had any side effects yet, just the effects of the steroids. Can anyone tell me when the chemo side effects generally kick in? I'm hoping that it's a good sign that I've not have anything so far. I still have the 5fu pump attached, it's being removed later today. 

  • Hello, and thanks for your post,

    I am sorry to hear about your situation. It is good to hear that so far you have had no side effects. It is difficult to be specific about when side effects will start.

    As with everything, everyone reacts in different ways. Some people experience more side effects than others.

    We have some information on our website about the FLOT regime and the potential side effects that you may get which you can see here

    There is a long list of side effects which you have probably been given already by the hospital. Not everyone experiences all the side effects, but it is good to be aware of any side effects that can happen.

    Your blood count, particularly your white blood cells can be affected by the chemotherapy. The white blood cells are the cells that fight infection and the doctors need to check this before your next cycle of treatment.

    You may find your bowels are affected with the treatment particularly as time goes on. Some patients complain of constipation and others complain of diarrhoea but this does vary from person to person. 

    You should have been given a helpline number at the hospital if you feel unwell it is important to let them know. It is a good idea to have a thermometer at home so if you feel unwell you can also check your temperature.

    Trying to drink enough fluid can help with symptoms. It is a good idea to try and drink at least 2 litres a day.

     The charity Bowel Cancer UK have some tips on helping with side effects if they do occur. Have a look here

    Soreness in the hands and tingling in the fingers can occur but this may not happen until you have had a few cycles if at all. 

    With all side effects it is important to report them to the doctors and nurses before your next cycle as sometimes the doses of drugs are reduced or delayed until symptoms improve. The doctors can also sometimes give you medication to help control any symptoms.

    I do hope that your treatment continues to go well.

    If you would like to talk things through with one of the helpline nurses then you are welcome to give us a ring.

    Our helpline number is Freephone 0808 800 4040. We are here Monday to Friday 9am to 5pm

    All the best,

    Catherine