Breast cancer stage 4 with spine meds

 

1 posts since

8 May 2023

8 May 2023 09:18Invasive lobular carcinoma ER8 PR8 HER2 negative stage 4 

Hi everyone 

I was diagnosed 6 weeks ago with invasive lobular carcinoma ER8/PR8 HER 2 negative with meds to spine in 5locations and both hips, the primary cancer is in the left breast one 1.1cm and the second is 0.5 cm

started the letrozole 2.5mg nearly 4 weeks ago and also 3 days ago I started the ribociclub 3 tablets a day

Any advise as I am new to the forum

Thank you

 

  • Hello, and thanks for your post,

    Welcome to the forum. Hopefully, more members will come forward to share their experiences or you could post on yet another thread as you have posted on 'ask the nurses'.

    I do hope that your treatment is going well and if you are having any pain in your spine and hips that this is being well controlled. 

    You are probably being followed up regularly at the hospital but you may find it helpful in between appointments to make a list of any side effects that you experience so you can let them know at your next appointment.

    I am not sure where in the country you are living but if you are near a Maggie's Centre then do take advantage of any courses or support they offer. They also offer online sessions if you don't live near a Maggie's. Have a look here

    If you haven't not come across Breast Cancer Now you might find it helpful to also look on their website here

    They also have a forum and a service called 'Someone like Me' where they can put you in touch with other women in a similar situation. Have a look here

    You may also find it helpful to ring and chat through any of this with one of the helpline nurses. We are here Monday to Friday 9 am to 5 pm and our number is Freephone 0808 800 4040.

    All the best,

    Catherine