"Slightly unusual Fibroid"

Hello,

I recently had a external abdo ultrasound and a tranvaginal one for heavy and clotty periods. The radiographer mentioned fibroids and during asked me if I had previous surgery or pregnancies. I have not. I am 30, no kids and no previous surgery. 

After this I have had an urgent gynae referral and referral for an MRI. My GP told me I had multiple fibroids and potentially adenomyosis, which I had never heard of, on the phone. Since then I received a consultant letter from gynae stating a "slightly unusual fibroid". I have had a cousin with breast cancer and another with cervical, both in their 30s. So "Slightly unusual" and the speed of the referrals have made me nervous. 

I have been unable to contact anyone to ask more. So does anyone have any experience of or an idea of what makes a fibroid "unusual"? I know it's not an easy question but with fibroids being so common and people living with some large ones, what's more 'unusual' to the point of investigation. 

I also don't meet the risk factors of adenomyosis and I am fearful it's because the signs of it could mimic cancer on scans? 

 

  • Hello and thanks for your post,

    It is never easy waiting for tests and the results of tests wondering what it will all mean. I can understand that when someone has cancer in the family makes you more aware of your own health.

    Fibroids are common with around 2 in 3 women developing at least 1 fibroid at some point in their life. The NHS have some information about uterine fibroids here

    I can't say what the consultant means when they describe a fibroid with an unususal shape but when a radiologist wants more information then often another test is organised such as an MRI.

    You mention that the consultant mentioned possibly having adenomyosis which you can read more about here

    As you have probably read adenomyosis is a condition where the lining of the womb is found in the myometrium (muscle of the uterus)

    Try not to overthink it for now there are many different conditions far less serious then cancer but often it needs the expert eye of a gynaecologist to review someone's scans to work out what it all means.

    Even though it is useful hearing what others say on the forum it is worth bearing in mind that everyone's situation may be very different from yours.

    If you feel that it would be helpful to chat to one of the nurses on the helpline then you are welcome to give us a ring. our helpline number is freephone 0808 800 4040 and we are here monday to friday 9am to 5pm.

    All the best,

    Catherine

  • Hello,

    Thank you for responding. I am a nurse in the NHS and my struggles to get anyone to talk to to find out what "unusual" means has left me totally deflated and let down with the service. Hence why I have taken to the dreaded google and found some conversations within the forum that have helped. However I agree not everyone has the same scenarios, so I felt compelled to start my own thread to find someone to talk to. So may try that number so thank you.

    Sam