I am a 64 year old man who just over 2 years ago was diagnosed with terminal A.M.L. and was given between 6-12 months to live,I was not suitable for chemo so they decide to try a cycle of radioactive tablets and daily stomach iinjections for a month ,the tablets did not suit me and I was a frequent flyer with the ambulance service which include 3 bouts of sepsis!
after a few months of this I decide not to have anymore treatment so I was move from hospital to our local hospice and my wife was told that it would only be a matter of days ,I was in the hospice for 2-3 weeks when the doctors said that as they wer'nt actually doing anything for me medically and I said that if I was going to die I would rather do it at home in my own bed so with a care package set up I came home and am doing all right in myself with the support of my Wife ,carers and the hospice where I go for complimentary treatments coffee mornings etc..

The last few weeks my wife has said that she thinks I'm getting worse with excessive tiredness ,slurred speech ,breathlessness and forgetting things etc , I have even had walking dreams!!

We were wondering if these symptoms could be Cancer Fatigue Syndrom and wondering if this could be the start of my downward slope towards the inevitable end?