Hello Alwaysforever,

Welcome to Cancer Chat.

Treatment options can depend on a number things and your specialist nurse or consultant with be the best person to discuss things with. While it can feel confusing they'll be the best person to answer your questions. There is some information on possible next steps here, which I hope will help give you a better idea. I'm sure our members with similar experiences can reach out to you.

If you'd like to speak to one of our cancer nurses you can on 0808 800 4040. Lines are open from Monday to Friday between 9am and 5pm.

Best wishes,

Moderator Anastasia

Hello Anastasia, I have come to you because my specialist bowe

nurse has never seen this cancer before although has worked in colorectal for many years , so I have not got any confidence in her

she has not been able to answer my questions. I am seeing a consultant but again they have worked in the same hospital for many years and if the nurse is saying I am their first case I feel I need a second opinion. 
I was hoping more people would have replied to my post who may have this very rare cancer. 
I would appreciate if anyone medical from cancer research could give me an answer 

Hello Anastasia, I have come to you because my specialist bowe

nurse has never seen this cancer before although has worked in colorectal for many years , so I have not got any confidence in her

she has not been able to answer my questions. I am seeing a consultant but again they have worked in the same hospital for many years and if the nurse is saying I am their first case I feel I need a second opinion. 
I was hoping more people would have replied to my post who may have this very rare cancer. 
I would appreciate if anyone medical from cancer research could give me an answer