Hello and thank you for your post,

It does sound like you have a lot going on a the moment in terms of your health so I am sorry to hear about this. It must be a worrying time for you.

Be reassured that you are being referred to specialist teams to find out what is the matter. Please remember that these symptoms do not necessarily mean you have cancer.

Fluid can happen in the uterus for many reasons such as polyps, infection and fibroids and in most cases it is not caused by cancer. 

An urgent referral is made if there is a concern (by a doctor) that someone could have cancer, although most people will find out that they don't. If you are unsure what type of referral has been made then get back in touch with your GP practice as they should be able to tell you. 

I hope you know more about your situation soon. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Take care,

Caroline

Hi there. I recently went for a gyno referral due to various symptoms, pelvic pain, some bloating and unusual bloods. (I'm 38) at initial scan they found that I had fluid and also funny enough mentioned my womb was in an unusual position. I had a follow up at gyno 2 weeks later and they said the fluid had cleared up, potentially could have been a burst cyst or something and that could have been causing my pain but nothing sinister. I will say my pain has been much better since. Womb is just in a slightly strange position but they said every woman is different, one of those things. So all good for me. I hope you have a similar result

Thank you! It's a relief to know its most likely nothing serious & to know I'm not the only woman to have oddly positioned womb.

im not being referred urgently so that's positive too I think.

Update ~ I have constant period type pain and heaviness in my pelvis. Saw Gynaecologist a week ago and now on a waiting list to have a stereoscopy.

I’m in quite a bit of discomfort, with still no answers.

I had a cystoscopy in April to see if they could determine the cause of my needing to urinate more frequently albeit with out any pain in passing. Every urine sample I provide has non-visible blood as well as leukocytes. The discovery was a patch of cystitis cystica - although had no follow-up!

I am being re-referred to urology.

any thoughts would be appreciated.

Hello Tmom and thanks for getting back to us with an update,

I am sorry to learn that the pain is persisting and that you are no further forward in finding out what is the matter. It sounds like you are still waiting to hear what the gynaecologist thinks, presumably, they need to know if the hysteroscopy comes up with anything before they can give you their opinion.

I'm afraid I haven't come across cystitis cystica before but from what I have read it is a benign (non-cancerous) condition most probably due to chronic infection or irritation - a possible source of irritation could be bladder stones. If you haven't already, I think you need to talk it over with the urologist- perhaps this is what the re-referral is for.   

This pain seems to have become quite chronic (long lasting), so it might be worth taking a look at a leaflet produced by the Royal College of Obstetricians and Gynaecologists for patients with chronic pelvic pain which explains some of the potential causes. You can access it at this link.

Sometimes it takes a while to find out what is causing pelvic pain and the process involves ruling things out which might involve seeing different specialists and having a range of tests. I do hope that you find out more soon and things improve for you. 

Do give us a ring if you want to talk anything over. The number to call is Freephone 0808 800 4040 and the lines are open weekdays 9-5.

Best wishes, 

Julia 

Thank you Julie, your response is much appreciated.I’m just in constant discomfort.

Thank you for sharing the phone number I really appreciate it.

clare x

Hi,

I rang my gynaecologists secretary and I’m in the waiting list for the stereoscopy (urgent 3).

I was told that the current wait is 12 - 13 months!

I am going to ring the doctors as I’m in so much discomfort, I’m taking paracetamol regularly & using a heat pad when I’m sat. But I’m not getting any relief and the discomfort is waking me at night.

Clare

Hi , you say you’ve been re referred to Urology , I suggest you chase that up and hopefully they’ll be able to help you