Hi Hanging in there and thanks for posting.

I'm sorry to hear about your dad and the situation at home.

You mentioned your dad is having palliative care at home and being seen by the community nurse, but does he have support from a specialist nurse, sometimes called a palliative or a Macmillan nurse? If he does do you think it may be possible for you to get in touch with them, discuss what is happening and see what they are able to help you with.  If he is not in touch with the palliative care team, his GP or community nurse team can refer him to them.

These nurses are often an excellent contact and the people who are your main link to the rest of the community team. Talking to them can often provide more information and give your family an idea of the local support available.  They can also help with medication.  They are the experts in helping people living with cancer control symptoms they are having, and feel more comfortable.  

There is a link here which can give you more information about the support that should be available to you:

https://www.cancerresearchuk.org/about-cancer/coping/dying-with-cancer/help-and-support-when-you-are-dying

I have provided some links from our website below which you may like to read.  There is quite a lot to take it at the moment, but you may like to come back to these pages later, when you have a few minutes.

There is some information here about coping with cancer which might be helpful for you and your family:

https://www.cancerresearchuk.org/about-cancer/coping

Finally I have added a link with some information about what happens when someone is dying with cancer.  It may be upsetting to read now but could be helpful in the future for you.  It gives you an idea of what to expect in the last few weeks and days of someone's life, and what happens after someone dies:

https://www.cancerresearchuk.org/about-cancer/coping/dying-with-cancer

I hope this information is useful.

Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  Sometimes just talking things through with someone outside the situation can help you think things through more clearly. 

The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Take care,

Rachel

Thank you for responding, we have been referred to the McMillan nurses on the 16th January and dad's doctor was chasing this up on Tuesday but as of yet we haven't heard anything from them.