Large Oral Tumors

At the beginning of January my husband was seen by the ENT service at the hospital as he had a growth in his mouth stopping him from eating or talking properly. The Intern took a piece for an urgent biopsy and then arranged for follow up treatment which included a laryngoscopy the following week. During that procedure the surgeon removed two tumours from his mouth (one 5x5cm and one 3x4cm!) and sent them off for biopsy. A week later we were told that the results of the first biopsy were inconclusive and that we would have to wait for the biopsies on the actual masses. During the consultation the word cancer was bandied about but no actual evidence of cancer was given. We weregiven today as a follow up appointment but it was cancelled yesterday by the Doctor as she said the biopsies were being reviewed  as they still don't have a reliable result.

We are 4 weeks down the line from the first biopsy and we still have no definitive answer on these tumours. I have read that, if biopsies take a long time it generally isn't good news. It worries us that, if the tumours are malignant, 4 weeks have passed with no treatment and surely time is of the essence in that respect?

My husband has also had a CT scan and MRI but we haven't been given any information as to the results of those tests either.

Should we be worried? Or should we be taking the tactic of no news being good news? How often are tumours so difficult to identify as either benign or malignant?

I hope someone can maybe  re-assure me/us.

Thank you for taking the time to read my "essay".

  • Hello and thank you for posting, 

    I am so sorry that you and your husband are having to wait for the results of his biopsies. It can be difficult waiting for answers when the doctors are taking longer to get the results.

    It is so important that the team get as accurate picture of what these tumours are so that they know if they are dealing with cancer or not, but also which cancer type and the grade. This information will then allow the team to formulate a treatment plan, if needed, which will be as effective as possible. It is not unusual to get a second or third opinion of the tumours taken or that the tissues are sent to another specialist laboratory so that this accurate report is achieved. But, this said, I understand that this process feels very lengthy and as if nothing is happening.

    Until these results are back It is unfortunately about the waiting game. This can be often the most difficult part as your mind can race ahead. But until the doctors have all the results, with any other tests or scans taken, no one is going to be able to tell you either way where this is going. 

    I am so sorry that I am able to offer the reassurance that you both want at this time, and anyone on this forum is only going to be able to come forward with their own individual experiences. But what I can say is that you will get the answers soon and any treatment needed will start. If useful maybe call us to talk this all through, sometimes discussing it with someone separate from the situation helps. Our number is Freephone 0808 800 4040, and the lines are open from 9am till 5pm Monday to Friday.

    Take care,

    Sarah.

  • Thank you Sarah. We can only hope that we finally get some answers this coming Tuesday when we have another appointment (which I hope won't be delayed further!). The waiting is really difficult and my husband is becoming more and more depressed. He is 75 years old and has never had any major illness in his life (which is very lucky) so this has come as a real shock to him.

    My best friend lost her husband to cancer two years ago next Wednesday and a contributing factor to his death was a 4 week delay in starting treatment so you can imagine what is going through my mind!