First traumatic colonoscopy now faced with second. Midazolam

My first colonocopy was booked for the very last appointment of the day although I had requested the first as I have extreme low blood sugar episodes if I dont eat. I felt ill when I went into the room, probably the laxatives (pixolax). I was given the sedation (midazolam I think. I felt the sedation, then the next thing I was walking out of the room. My friend was waiting outside. she asked how it went. I said 'fine'. She said I was screaming my jead off and when she spoke to whoever it was that carried it out the proceedure they said I was screaming and reaching up and they had to abandon the proceedure. I was puzzled as I had no recolection.

I was retching non stop after the proceedure and could not eat or drink and was sent to A and E. Finally I was given an anti emetic and I was ok.

I felt traumatised after the proceedure that I could not remember, and that is not too strong a word. It makes me angry when people use the word 'sensitive'. I am not 'over sensitive' and do not have a particularly low pain threshold. Nor am I particularly anxious. 

Afterwards I knew I would rather die than experience it again. I jwas jumping and screaming at small movements and noises and this continued for quite a while. It didnt make sense as I did not remember the proceedure or any pain and everything I heard and read about colonoscopy said it was safe and I had taken sedatives. 

II know that the tranquiliser is similar to the date rape drug. It just makes you forget. does that mean you do not experience the pain at the time? I know that women who have experienced rape under this drug are traumatised, although you could say that they were tranquilised so shouldnt have felt anything. 

Blood was found in my stool so I may be offered another colonoscopy. If they offer increased sedation I suspect it will be more of the same. 

 

  • Hello Jillsy and thanks for posting, 

    I am very sorry to learn how traumatised you are feeling after attending this colonoscopy appointment. 

    I think it is important that you contact the endoscopy department and let them know how you have been affected by the procedure.  It might help to talk it over, and ask them to explain what happened when it was attempted and also to find out what they would suggest if they want to repeat it. 

    Some people do find having a colonoscopy particularly uncomfortable - everyone has a different body shape and some may have a loopy bowel that makes the examination more tricky.  Not everyone is able to complete a colonoscopy

    As far as I understand it midazolam is known to affect the memory of events around the time it is given. Sedation can help muscles relax which may help to make a procedure like a colonoscopy more comfortable, but I can only assume that as you were calling out and the colonoscopy was stopped that you were in pain and able to communicate the fact at the time.     

    It is possible that the jumpiness and increased sensitivity to noise you noticed afterwards was a drug reaction and not related to the physical experience of the examination. This is something to ask about as well.

    I do hope these feelings begin to settle soon. 

    If you want to talk anything over please do give us a call on Freephone 0808 800 4040, we are around weekdays from 9-5 .

    Wishing you the best,

    Julia

  • Thank you so much for your reply nurse Julia.

    I have found some research on the drug Midazolam which may be interesting and exactly describes my experience and my thoughts about it. This is an extract.

    European Journal of Gastroenterology & Hepatology 19(6):p 465-470, June 2007. | DOI: 10.1097/MEG.0b013e3280ad4425

    https://journals.lww.com/eurojgh/Abstract/2007/06000/Midazolam_pain,_but_one_cannot_remember_it__a.5.aspx

    Abstract

    Background 

    Benzodiazepines, especially midazolam, are the most frequently used agents for gastrointestinal endoscopy worldwide. Among other parameters the quality of sedation is determined by patients' satisfaction assessed after endoscopy. This approach is misleading as the potent amnestic effect of midazolam conceals pain actually suffered during the endoscopic procedure involving distraction of the endoscopists from their actual tasks by audible reactions and defence movements. In this study, we eliminated the influence of patients' amnesia on the assessment of the quality of sedation and rather interviewed endoscopists and their assistant personnel about their experience with midazolam sedation. We replaced the mostly vague term ‘compliance’ by terms which unequivocally describe the reactions of the patient during an unpleasant endoscopy.

    Results 

    Participants were highly experienced with the majority having more than 10 000 procedures and a median of 18 years of endoscopic experience; 77% of endoscopists utilized midazolam for sedation. Ninety-eight percent of the questioned physicians felt that patients have pain during endoscopy with midazolam±opioid, but do not remember later. Ninety-two percent reported that it happens that patients moan aloud because of pain and almost half of the endoscopists (48%) reported of screaming. The majority of the endoscopists (91%) reported fierce defense movements with midazolam or the need to hold the patient down on the examination couch because of fierce movements, respectively (75%). Seventy percent of the endoscopists wished to have the rooms for endoscopy preferably soundproof away from the waiting room and 93% wished for better sedative agents.

    Conclusions 

    Midazolam was rated as insufficient for sedation by both endoscopists and their assistant personnel. A wish for better sedative drugs exists.

  • Hi my colonoscopy during last year was done by having an IV injections and a CT scan. The injections make you feel as if you have peed but you don't. There's no pain,  it's fine when they are examining the bowel but another procedure would be needed to take biopsies.  This may be better for you next time if they have to repeat the colonoscopy. 
     I hope you are feeling better 

    take care 

    susie