Pain after lumpectomy & Sentinel Node Biopsy

Hello, 

I had a lumpectomy & sentinel node biopsy on the 1st December. I'm still getting some pain, tightness and the area is very uncomfortable, my breast is also sore and feels very bruised. I'm struggling to maintain a daily routine as I'm right handed and the lumpectomy was on my right breast. Everything I used to do without any thought or problem is now a difficult task. Showering, dressing & housework just isn't easy anymore. Is this normal? 
I also feel very low & feel my life will never be the same again. And to top it all I have to have a second lumpectomy on the 5th January. The surgeon was unable to get clear margins when one area of DCIS was removed. On biopsy results end of October, the DCIS was only 8mm, but the surgery on the 1st December showed it was 25mm. How is this possible? 
I also had 15mm of IDC and the margins were clear. I'm   HER2 negative, ER positive, I was so upset at my result appointment I barely asked any questions. My husband sat there in disbelief and just looked speechless. I have no idea what lies ahead after my 2nd surgery, I feel lost. 
 

  • Hi Boops and thanks for posting.  

    It does sound as if you've had a lot going on recently.  

    I have including some information here about recovery from sentinel node biopsy and lumpectomy which you may find useful, but some people do find it takes some time to feel they are getting back to normal after this surgery.

    You can talk to your breast care nurse about how you are feeling physically and emotionally, they can give you practical ideas about ways to help your recovery and offer you support.

    They may also want to assess you to make sure you don't have an infection.

    You mentioned that you are feeling very low and lost.  This can be a very normal response to going through cancer, but there is help for you if you would like it. Many hospitals who provide cancer treatment have a Macmillan or Maggie's Centre on site.  These are places where you and your husband can get support and information.

    We also have pages on our website that can support you with your mental health.

    I'm afraid I can't tell you why your lump was 25mm on 1st December.  It sounds like it may be useful for you to talk things through with your breast care nurse or your consultant who will be able to go over what was discussed in you appointment.

    I hope this information is useful to you. But please do get back to us if you need any more information or support.  You might like to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care,

    Rachel

  • Thank you Rachel for your helpful reply. I do feel I need some help and advice and will contact my BC nurse after the bank holidays. Happy New Year x 

  • Boops 

    hello how are you doing did you have the 2 nd operation afterwards to get clear margins ? 
    hope you are fully recovered now ? 
    love Lara ️

  • Thank you Lara, yes I had the 2nd op margins cleared now. Just waiting on radiotherapy dates, only need 5 sessions. I'm on Letrozole and hoping that the side effects are minimal xx 

  • Boop

    i had 5 sessions also 

    amazing now you are all clear lovely news I finished radiotherapy in early nov , honest opionion it went very well just make sure you use the moisturiser regularly I mean I used it so thick constantly drunk lots of water 

    I did have tiredness for a few weeks after but nothing that put me to bed but coukd definitely feel it 

    just think of it as the last chapter that's how I saw it it worked I wish you all the very best for this 

    love Lara ️

  • Thank you Lara. Pleased you are at the end of your journey. I was initially told I would probably have 18 sessions of radiotherapy, but Oncologist said only five. 
    It was a relief but only for the fact I have to travel so far to receive it. 
    I will definitely be using moisturiser and making sure I drink lots of water, which I generally do anyway.

    Light at the end of a long dark tunnel now.

    Mary xx