Hello Johnny, I'm sorry about the loss of your Dad and its extremely hard to cope with especially when you're present, I know because my husband of fifty odd years died January this year of lung cancer, they wouldn't put the driver in even though it was in the house, as he wasn't near death, they said I knew they were wrong and watched my beloved husband, along with my grown up daughters, suffer in the most awful way, right up until the last day of his death they would not give him it.  By 8.30 that night we were all in an awful distressed state so I called the district nurse, Norman was injected and died three minutes later, I was relieved  that he was free from pain and the awful fact that his death was being drawn out longer than nature intended.  Like you my daughter questioned the injection and the quick decline but Norman wanted that and so did I so I explained to my daughter that it didn't matter how quick it was, anything was better than the suffering we were all watching.  So your Dad probably had a better care package and people who understood how ill he was, so think more on how much better he was cared for in his last hours, it's so early for you and your head will be spinning, death is not easy and I fully understand your questions, take care Johnny and I hope you all have the love and support you all need.  Kinds regards, Carol 

I'm so very sorry for your loss. 

I was in a similar (but not identical) position after my mother died, after having been denied treatment and eventually put on a syringe driver. Our family weren't forewarned that this would result in an abrupt loss of consciousness and death inside 5 days. However, afterwards, there was an insinuation that we should have known. 

I had many questions for the medical professionals, that I didn't ask, and I have regretted this ever since. 

I would encourage you to ask for a complete list of the medication given to your dad, to view his notes and get an explanation about the decisions made regarding his care. 

It seems that there has been an unfortunately lack of communication with your family, and you need clear / unambiguous answers, in order to give you closure.

Thinking of you all. x 

Hello JonnyR thank you for your post.

I am so sorry to hear that your dad has died. This must be a really difficult time for you and your family and I can appreciate you have questions about how and why it happened.

While no one here can answer your specific questions about what drugs were used it does seem to me as a nurse that the community team did their best to give your dad a kind and dignified death.  I think when someone develops problems towards the end of their life a decision needs to be made about whether you keep someone alert with troublesome symptoms or make them comfortable. 

Some treatment can cause the patient to be drowsy and more sleepy but so can advanced cancer itself. Your dad was not necessarily given large doses of medication but this is something you can talk with his team about. 

The fluid he had in the back of his throat were secretions that we all produce but when your body slows down, as it does when you are dying, they can build up in the back of the throat area. It can cause the sound that you describe and this can distressing. It is likely that he was given medication to help dry up the secretions.  

Please read our information about when someone dies, it will help, click here  to see it.

You were with him when he died and from what you describe he went peacefully and did not suffer. You will have an opportunity to talk with the team that cared for him. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Take care,

Caroline 

Dear Johnny, Am so sorry to hear about your loss. Things have happened very quickly since you first posted on here and it is going to take time for you to process everything. Can I first say that I have personally had relatives die much quicker after diagnosis without being put on a syringe driver, so things can happen very quickly.  Secondly, as someone who lives with (non-cancer) respiratory disease it is hard to convey how horrific and terrifying – yet not always painful – it can be when lungs struggle for breath. It is so horrid that I sometimes think I cannot go through this again when a bad period comes and it is only the thought that it will pass that gets me through. Don't get too hung up on the fact your father was not in pain, if he was agitated he was in distress. Since he wasn't going to get back to not having to suffer, was it worth putting him through anymore than he had to go through? Perhaps in time you will come to see how your father was spared suffering and those very experienced nurses caring for him acted with kindness having recognised that he was in the process of dying. Your father strikes me as an incredibly strong and courageous man who did not want his son to know how much he was suffering. While you did not have as much time as you wanted with him, you were there for him, you did all you could. Try to make peace with this as I feel it is what your father would have wanted. It is important now that you find space for yourself to grieve, but I appreciate you also need to be there for your mother.  How is she taking this? If she is desperate for answers, then maybe you could gently find out more. But, if more questions will unsettle her be mindful of that as you proceed. I think you all did your best. You tried really hard. Take care Johnny. It's not an easy time. Grief has to work its way through. My thoughts are with you.