Low potassium

Hi, new to this forum, so thanks for allowing me to join.

Diagnosed with Classic Lymphoma in February this year. After nearly 7 months waiting and some failed biopsies, finally starte SBVD chemo 8 weeks ago. Had 4 treatments so far and surprisingly better than I thought I would be.

Have lw potassium..3.1 and taking Sando-K for last 7 days (yuk) but not having any effect..eating bananas, oranges, potatoes, chicken, spinach, kale, drinking orange juice but nothing making much difference. Any ideas what else I could do please? Really not keen on infusion so need to up my potassium intake drastically if I can.

Thanks for your help

  • I share your aversion to Sando-K - yuk

    I was given a leaflet to increase potassium in my diet - its actually aimed at decreasing potassium levels but lists foods high in potassium and gives lower alternatives so I was just told to choose from the high potassium list. How you prepare food is also important - potatoes and veg should not be boiled/cooked in water. I was told the best fruits are apricots, mango, dried fruits and avocado. Best veg - potatoes, tomatoes and dark green leafy veg like spinach and kale. 

    Hopefully the link to one of the NHS dietician guides will work, if not speak to your GP or someone at the hospital   www.ouh.nhs.uk/.../50835Ppotassium.pdf

  • Hi Lenie, thanks for the reply and advice. I already eat most of those foods apart from dried fruit. I have upped my spinach and all green veg. since first being diagnosed. Steam chicken, fish, veg. Don't eat red meat and havent had alcohol for 3 months, although I didnt drink much before. I truly believed that was pretty healthy!  Obviously not healthy enough. Will take a good look at the site you have recommended and speak to the Macmillan nurses at my chemo tomorrow to see how I can be referred to dietician.

    Gosh, it's not the disease that scares me, it's all the side affects.  Thanks again for a quick reply..onwards and upwards!

     

     

  • Hello and thank you for posting.

    I see that you've been given some good advice from Lenie 56

    I would also advise you to talk it through with your hospital team or specialist nurse (CNS), as it can take a few weeks for potassium levels to change by diet and tablets alone.

    But I have found these two links relating to diet which may be useful. This first one is an official diet sheet from the Royal Papworth Hospital Trust, and this second one discusses all the vitamins and minerals needed for body function.  If you look further down the page it talks through diet changes for increasing potassium levels.

    Take care and I hope the links I have provided are useful. If helpful maybe talk things through with one of the nurses on our helpline.  The number is Freephone 0808 800 4040, and the lines are open 9am till 5pm, Monday to Friday.

    Sarah.