Hi everyone I was hoping for some advice.
I am 29 and have been having problems with my breasts for 4 or more years. They have been very painful and leaked fluid. I have never had a baby. None of the GPs I have seen have ever been very interested. Just told me breast pain is normal on the pill and with fibromyalgia (which I am diagnosed with).
over the last 6 months I have been talking to the GP more about my breasts, particularly the left one as it has been really painful and just has not been feeling right. I had an exam with the GP's hands and a blood test and was told that all is fine but my hormone levels are slightly raised (which is to be expected with the combined pill).
In April my nipple suddenly inverted and my breast became incredibly painful. There was a large painful lump present around the nipple area and a change in the discharge.
I was sent for a breast scan and given antibiotics. Anti biotics helped with the pain quite a bit but the lump was still there.
when I saw the consultant I again found him very uninterested in talking about my general breast health. He diagnosed me with periductal mastitis and sent me for an ultrasound scan. When I saw the female consultant and technician for my scan they asked how long ago I had had my baby. I told them that I had not had one. They told me it was important to ask my main consultant to think more about why this might be happening to my breast, especially with symptoms having been going on for a long time. She also told me that the fluid inside my breast looked thickened, and she did not want to attempt to aspirate as it would only hurt and was unlikely to ease my symptoms much.
when I went back upstairs to speak to the consultant he made me feel quite stupid for asking why he thought my breasts were lactating. He kind of shrugged me off and said something similar to "because they are breasts". I have to admit I didn't push much more after that.
when I had my follow up I had finished my antibiotics and the swelling was much smaller although there was still a hard painful lump in my breast, nipple inversion, crusty yellow discharge and a small amount of dumpling above the nipple.
he decided to go ahead an aspirate despite what the female consultant had said. It was incredibly painful and all that he managed to take out of my breast was blood which he discarded (confirmed in his write up). He told me that I would be kept on the books and that I could call in to come back at any time.
I waited for about 6 weeks to see if it would heal up, but it did not. It was more swollen and bruised after the aspiration. It suddenly swelled up again and became incredibly red, painful, with this strange dimpling along the breast like orange peel, a greenish bruise colour along the bottom of my breast and my nipple still lays completely flat against my breast. I also have a sore swollen lump under my armpit.
I called the team to try and get an appointment, only to be told that all patients are discharged after 4 weeks so I would have to get re-referred.
I have managed to get referred back in but i was told that because I have been diagnosed with mastitis it would be a 3 week wait to see a doctor. I explained that I had new symptoms and was told that these sound normal for mastitis.
I am really concerned about my breast. It is just not right. I don't feel like any of the doctors are taking it seriously. I had to beg and call for days to get some pain killers (paracetamol and ibuprofen don't work for me, I believe because I also have Ehlers Danlos syndrome).
I have read up a bit more about about what the consultant is meant to do with bloody fluid drained from the breast and all of the sources I can find say that it is mean to be sent off for further analysis as it may indicate cancer.
I am really concerned that I am not being taken seriously. I feel very helpless and am struggling with depression and suicidal feelings. The GP is too busy to see me, they just text me telling me to wait and see what a fresh lot of antibiotics does for me. I am also diagnosed bipolar and recently came off of my meds because I was doing well managing my moods. I honestly feel like this is pushing me over the edge.
I think that I probably have no other option but to wait to be seen by the consultant. I am worried about what all of this time waiting will mean for my health. I am just very scared to be honest and feeling very tired with new pain raidiating into the back of my shoulder.
if you have any advice or just any words at all really I would be very grateful.