Huge dermoid cyst

Hi, I'm hoping there will be people in the group who can help with shared experience. I have 2 cysts which the think are dermoid. One is 15x14x9 cm which is very large with all the associated pain and digestive issues. The other sits behind this and can't be seen on ultrasound. This one is 5.5cm. My CA125 levels are only slightly raised which is good news. I went into hospital for pain management last week and was informed that my June mri ( that I'm still awaiting results on) showed the two cysts and that I had a bulky womb and fibroid to boot! My right ovary is if good size and seems to be healthy.

the consultant who spoke to me really upset me as he said they would perform a full hysterectomy through open surgery taking both my ovaries. He said I'm assuming you don't have periods! Yes I do.

 

I have to wait for this surgery as there is only 1 consultant at our nhs hospital that can do it and u derstandablh he prioritises the cancerous ladies.

 

my question is : is it not possible for this procedure to be done laparascopic and have other people experienced similar size dermoid that have been taken this way. Also have others experienced them wanting to remove all their female organs? 
 

I have my consultation and mri feedback with my consultant on 28th July so any advice would be gratefully recieved

 

Nikki 

  • Hello Nikki and thanks for getting in touch

    I am sorry to hear about these cysts you have and that are needing to have surgery and appreciate this must be a  worry for you and that you have some questions.

    Others may share their experiences here with you but remember everyone is different and what the best treatment is for one person will be different to another.

    It is good you have an appointment later this month to discuss your scan results and surgery further with the consultant. This will hopefully explain things more clearly to you about what and why they are recommending this type of surgery but also a chance for you to ask questions.

    The NHS website here has some good suggestions for getting the most out of your doctors appointment and some suggestions on the types of questions you may wish to ask.

    I wish you all the best but do get back if you have further questions or wish to talk.

    Take care

    Naomi