Results via letter?

I had a large breast lump biopsy a month or so ago and it came back as showing spindle cell lesions. The consultant was really vague and told me not to do any research and that they didnt know what it was but that they wanted to do surgery to get it out, and I got given an outpatient surgery appointment within the month. After the surgery he told me that he had taken out other lumps and that it would all be sent for analysis but that I would be seen in a month to discuss the results.

When I spoke to macmillain for more information they said that spindle cells are a form cancer and I should have been told that. 

I received a notification to say that my appointment has been cancelled, when I called the clinic they said that they had an MDT that day and that I would be receiving a letter instead? She said something like not wasting time me coming in. 

I am guessing this is good news and means that there is nothing more to worry about, that the letter will just have negative results? But has anyone had cancer results in a letter? If they have cancelled my appointment presumably there is nothing left to do but I have more questions about spindle cell and how to keep an eye or what to look for? It's only been a week since my surgery so it all seems quite quick.. 

Does anyone have a similar experience? Surely they would call or say face to face if there are any issues? A small worry is that I will be getting referred which is why it's been so quick? Or am I overthinking it?

  • Hello and thank you for your post,

    I realise that you are asking for other people's experiences but please remember that each person's experience is really only relevant to them.

    I think it is fair to say that all breast lumps removed will be looked at and discussed at the MDT (MultiDisciplinary Team ) meeting. Some people will get a diagnosis of cancer or be told that they will not have it. Some people will be told that more tests may be needed before a diagnosis is made.

    I can appreciate the worry you have and I am sorry to hear your are going through this. However, I am afraid that no one can tell you what this letter will say. It is now a matter of waiting to see what it says.   

    You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care,

    Caroline