Can’t cope with tamoxifen any longer

I've been on Tamoxifen for 2.5 years now and I just can't cope any longer - the joint pain has worn me down so much that I feel I don't even care if the cancer comes back (diagnosed 2015, chemo radio, surgery) I feel so depressed but my GP said that it's unadvisable to take anti depressants while on Tamoxifen. He urged me to stay on it but last week without telling anyone... I stopped, I know I shouldn't have but I'm at an all time low. I feel guilty for risking my life when because of my family I should put up with the side effects for them, but I can't .... anyone else in the same boat? 

  • Hello Tammy, and thank you for posting.

    I am so sorry you are so low with all this. It would be a good idea to get back in contact with your GP or your breast care nurse and explain how bad you feel with the effects and that you have stopped the tamoxifen. Sometimes drugs can be switched if someone is really struggling, this might be an option for you but you need to talk this through so you are clear about the benefits and risks. This is important so you fully understand the decisions you are making.

    I have placed a page here a link from the UK breast cancer charity, Breast Cancer Now about hormone therapies.

    They also have a forum which may be useful for you to get support from other women facing similar problems.

    I wonder if some talking therapy might help you. Struggling with side effects is a constant reminder of your diagnosis and can affect your quality of life, so it is understandable you would be feeling depressed. Here is a page on looking after your mental health when you have had a breast cancer diagnosis.

    Take care Tammy, and I hope things get more sorted for you soon. If you need to talk things through  with one of the nurses on our helpline. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Yours sincerely,

    Sarah.