So we are meeting with the Consulstant Urologist this evening to hear the results of the Ct,MRI and bone scan. The chest Xray for Oestolytic lesion came back as normal.  I am dreading the meeting however am being very posistive for Mike.who is at the moment out playing badmnton and apparently playing very well!.  He hasnt taken any pain medication for the last 3 days,is feeling really well. He appears to be aback to his normal self especially keen to do bits around the garden which he pur or for a few weeks.  I am not sure what to read into this, so just hope for a favourable outcome. 

Has anyone been thgouh this type of experience especially with advnaced prostate cancer and on hormone tablets.

Maud

Hi Naomi, we are meeting with the Consultnat this evening to get the results of Mike's MRI,CT and Bone scan. I am dreading the meeting, althogh my husband is not that concerned. Just to say his Chest Xray for Oesstolytic lesion came back as normal. Can you please explain what this means in terms of his prostate cancer with mets?.  Mike has been on HT now for over 2 weeks and in the last 3 days he has not taken any pain medication as he is not experiencing the pain under his right rib which he was before the HT.  He is very active, played badminton this morning and feels well in himself. Is this normal with HT?.  Any advice on the chest Xray please would help.  I am not looking forward to hearing the tsest results and trying to keep positive for Mike's sake. 

HI Naomi, are you able to tell me anything about the chest xray Mike had for Oestolytic lesions?.  The result was normal but I still am perplexed at this request.

Hello again

Sorry only just seen these further questions once I had posted a reply to your comment from earlier.

From what you have said the chest x-ray showed no osteolytic lesion (bone damage) that can be caused by cancer spread in that region. I can't really comment as to what this means without knowing what the findings from the other scans revealed but I am sure you will be told more about this later.

Hormone treatment can be really effective in shrinking down tumours and some patients do find their symptoms including pain can settle quite quickly after starting treatment.

I don't know what is going to be said tonight but try and keep an open mind. As others have also said on here many people live active prolonged lives with prostate cancer and many treatments are available to try and control and contain it for as long as possible even in metastatic disease.

I really hope it is positive news

Best

Naomi

Hi All, we had our appointment with the Consultant Urologiost and its not good news. Mike's cancer has spread to his lungs, lymph and spine. In addition he thinks there is a small lump in the rectum when he did an rectal examination. HOwever he wasnt sure about this and told us he will refer to the colo rectal team. So as you can imagine this is not what we were expecting given that Mike was feeling so good. HOwever the consultant did say that with drugs the cancer would be managed and controlled. I am so upset and in a state of shock at the moment. 

Maud

Really sorry to hear this ... It is natural you feel upset and shock.

Have you thought of posting this in the Caring for Someone with Cancer section too? Only a lot of people don't answer posts in the Ask the Nurses section. 

When given this kind of news, it does take time to process ... 

Try to take things one day at a time where every good day is a good day and the more good days the better.

I'm really sorry you are having to deal with this. It isn't easy.

Hi Naomi, we have had bad news thisevening.Mike's cancer has sprad to his lungs, lymph nodes and spine.  As you can imagine I am devastated and strangely enough Mike is taking this in his stride,althouh he did say he was disappointed with the news. The consutant said that the cancer would be managed and controlled with drugs, however at first a histology report would be needed from a biopsy. So this is the next stage and will have to see what happens.  I am so upset and was hoping that the cancer was contained just to the bones, but lung and spine is horrendous. I know it isnt going to be easy, however I will have to be strong for Mike and we both have to be positive. 

Hi Maud! I'm so sorry about the bad news. But I'm sure there is still hope. My dad was diagnosed with prostate cancer about a month ago. Luckily it was spread only locally. We decided to use our savings and go to a private cancer center and they told us all about the great advances in prostate cancer treatment and about the options to treat it as a chronic disease even if it would spread. Of course I can't comment on your husband's case but I think it's always worth it to ask for a second opinion. I don't think I can name the hospital here but it's in Helsinki, Finland.

Hello Delhi and thank you for updating us.

I'm sorry to hear this about your husband. It can be such a shock and take time to process this sort of news. I'm sure you will also get good support on the forum here too.

Do take care of yourself, caring for a loved one going through something like this and trying to be positive all the time can be draining. Here is a link to some information about looking after yourself.

If you want to call us to talk things through on the helpline then do on freephone 0808 800 4040, 9am till 5pm, Monday to Friday.

Take care,

Sarah.