Azacitidine for Elderly

Hello. My dad has been having azacitidine injections under the skin every 28 days over a period of 7 days. The round trip to and from hospital is 88 miles which he is finding very tiring and very costly. We do have a small hospital 6 miles away. My question is, does anybody on this same medication have it adminstered locally rather than travelling to a hospital where there are Marie Curie nurses? I do not understand why my father cannot get it closer to home when the jags are just under the skin, they take seconds to do. The azacitidine has to be removed from the fridge for ten minutes but I would have thought it could be transported in a fridge from the main hospital to his local hospital.

  • Thank you for your post.

    I am sorry to hear about your dad's situation and I can appreciate your question about having his treatment nearer to home.

    I am afraid that I don't think anyone here can tell you if he can have the Azacitidine injection given to him locally . However, it is a good question to ask his specialist team, this could be his clinical nurse specialist (if he has one) or the doctor treating him. The nurses that give him the injection may also know if it is possible.

    Some treatments need to be kept in a fridge right up to the point in giving them, so I am not sure if a local hospital would be able to store a supply of them, also not all nurses are able to give all cancer treatments.  

    If your dad cannot have his treatment given locally I wonder if he could have hospital transport pick him up and take him home on the days he has it.  You could find this out by contacting the hospital and asking to speak to the patient transport team. There may be some restrictions on who could use it, so it is worth asking about. 

    It might help to claim travel costs back, Macmillan Cancer Support have information about this on their website at this link  here 

    They give patient grants to some people who have cancer and who need it to pay for things that will make their lives easier. This could be used towards travel. You can see more about this and how to get one for your dad on Macmillan's website here 

    I hope this has been of some help. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care,

    Caroline