Confused

Can u please answer "what does it mean an 8cm tumour in the tibia showing osteoblastic activity more so at the caudal aspect" this is after 4 years waking up with cramp I the leg, the colour has changed to blue and purple and black and is so weak and my knee swells up 

  • Hello and thank you for your post,

    I am sorry but as a nurse I cannot explain what this result means. You really need to speak to the doctor that ordered the scan to best understand what the result is. 

    I hope you get to understand more what this means soon.

    Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care,

    Caroline 

  • Thank u but I've tried on numerous times to be seen by the doc who arranged the full body bone scan and blood pool scan yet I hit a brick wall as the secretary told me in Dec a week after the scan that the doc isn't saying there is nothing wrong there is just not a ryhmatology diagnosis so he doesn't have to speak to me yet refereed me to no1 and was aware I was changing doctors and now we are 5 months on and I've git all my records off the nhs and the pictures of my scan but also find out that I'd asked the doc to put my CT scan pics in my record as i had it does 2 years ago organized by the nhs yet no pictures ever put on my record yet someone posted me the disk from the spire hospital where it was done.. on 3rd Nov 2021 I haded that disk to a Dr in a Manchester hospital with an 8 page time line of what I've been through the past 8 years repeatedly being treated with antibiotics and a high dose of opiates the 1st ryhmatology I saw in April 2021 listened to all I had to say looked through all my letters and asked me to do the time line he also diagnosed vasculitus bit then that was cnacelles and I was asked to go back 3rd that's when saw  ryhmatologist Dr who had been asked for a 2 nd opinion to rule out Sappho like they were asked earlier in the year (I'd been sent to them from sarcoma clinic) I saw sarcoma Nov 2020 who said didnt think it's sarcoma from 1 mri pic of my ankle from tbe  base of my foot so that didn't even show what they were supposed to see... so I've now got no speallist or consultant for my leg yet have all the scans and letters and proof what's happening.. but what is the point in me having all this proof and yet no1 to listen or help me.. I am a single mum of 4 and I feel myself deterioration my life has changed drastically in the past few years the last few months the worst now it's just like I'm waiting to die I going the docs r wondering how I'm still alive and they r hoping the longer they leave me IL die quietly well thats not me I am trying to fight to save my life but never thought it would be this hard to get the righht help and treatment that I need 

  • Hello and thanks for getting back in touch with us.

    I am sorry to hear how you are feeling and the worry you have.  You have had scans and appointments with different doctors so I do think that it is very likely that no one is concerned you have cancer. If there was a concern you would have been told.

    I hope you don't mind me saying but it is possible to get confused and misunderstand the results and reports of scans. They are technical and are for health professionals. If you have a particular concern about a result then do discuss this your GP and say what is worrying you.

    Please do talk with your GP because while I do think it is unlikely you have cancer you are worried and I do think your GP can help you.

    Take care,

    Caroline

  • So does a 8cm tumour with osteoblastic activity not meaning cance in my leg bone?? Because I don't understand what else it could mean.. my CT hasn't been added on to my hospital fine even thou the nhs ordered it so I can't understand why except that I'm being left like this coz I had a c section nearly 9 years ago and I was left with an 8.8cm abcess wedged firmly behind my bladder yet for 4 years the doc was saying I had fibromyalgia and Reynard and I kept saying my insides were what was wrong I struggling tk eat lost 2 and half stone in 2 months and had pneumonia 6 times in 2 years cellulitis 3 times bladder infections repeatedly then Wisdom teeth abcess then staphylococcus aureus stabbed from very painful lesions on mh face I was told was because the wisdom teeth yet they were removed and still suffered lost front of my hair line scarred all my face to then b told 2 years later that the main bad wisdom tooth was eroded itself into my him so had it removed then I've had sarcoma clinic refer me to rhymatology to rule out Sappho of I sent u my medical recorded scans I have got from the hospital can someone please tell me what is going on because you tube and Google lens are a wonderful way to find out what's going on n I've spent untold hours searching to answers 

  • Hello again,

    I am so sorry that you are feeling so worried about your health

    I hope you have had a chance to discuss all your concerns with your GP as Nurse Caroline suggested.

    Neither the forum or the nurses can give you the answers that you are looking for. The answers you are looking for will also not be found on the internet. This is because it is so general and is not specific to describe your individual symptoms. 

    It is only the doctors who are involved with your care who will be able to tell you what is going on. Do make a list of all your concerns so the doctors can try and help you.

    It is far better that you discuss your concerns with the doctors involved in your care rather then searching for answers on the forum or on the internet.

    I am sorry not to help any more.

    All the Best,

    Catherine

  • Thank u for ur help I'm sorry to go on ro much just seem to b passes from pillar to post the past 4 years anyway.. all my GP seems too care about it referring me to mental health as their hands are tied with my leg as they r wrote to the specialists sarcoma (who dismissed me 2 years ago) but he has responded and this is now 5 months since had the full body bone scan and still not been spoken too about what it all means and I wish my gp would give me time to express my thoughts and feelings with her but nope just hurries me off the phone eith can't deal with everything n go on like they can't do anything to help me thank u for ur time thiu