Hugh grade(severe) dysplasia+lletz

Hi all, I've been on this forum 24/7 for the last 6 days reading everything

just hoping to hear if anyone had similar stories?

I had a severe high grade dysplasia +hpv on pap, was referred to colposcopy within 10 days but managed to get myself in 4 days after the letter.. was such a mess 24/7.

had lletz done right away, at first the doctor thought I might not need it but then after getting me in the chair said "we definitely need a treatment today!" 
after it was done she said it does not look like cancer to her but won't know for sure until after the biopsy results come in, and that I might need another treatment! 
totally confused with her wording but I was in such a state I could not process it all & ask questions right awaylike another treatment like chemo or another lletz?? also overheard while going to get dressed the nurse asking the doc something about me doing something through THEM?and the doc said "no she will do it through her gp" something like that.

prior to this been having cc symptoms for almost two years, gp and emergency department basically said it was all in my head for 2 whole years I was in and out of gps and a&e over 20 times then that smear test came back to basically confirm what I have always suspected?

just wondering if the colposcopist has to say if it's cancer or do they not tell if it is so that you can be less anxious while awaiting biopsies results?

 

Will appreciate anyones input & stories having a real hard time mentallyx

  • Hello and thank you for posting.

    I'm sorry you are feeling so anxious about what is happening, but do remember that the screening programme is about prevention and it is unusual for it to pick up an invasive cancer. Most treatments given in the colposcopy clinic are for abnormal cells to prevent cancer from developing in the future. 

    Understandably a lot of people can over think things that are said when feeling heightened anxiety, comments made whilst professionals are mulling things over, or thinking out loud can become something so much bigger when we are feeling on edge. The colposcopist would need the biopsy results to confirm their impression, but if they were concerned they would be honest and straight with you.

    I'm sure others may come forward on the forum with their own experiences, but do remember that they are that persons own situation, which is individual to them.

    Take care Vindaly9, and do try if you can to occupy yourself while waiting to hear back. Keeping your mind busy with other things may provide some distraction to help time pass quicker and help your anxiety. The internet is such a great source of information but it is also not a doctor, so may be best to steer clear as googling can sometimes cause more concerns.

    Hopefully you will hear more soon,

    Sarah.

  • Hi, thank you so much for your reply! 
    I'm slightly more at ease now hearing from you that they would tell me right then & there if it was the C word.. 

    hopefully the result of the biopsy will be what she had predicted, although still worried why she said that I might need more treatment.. thank you again! X