Postmenopausal bleeding after 10 years

Hello Greenvelvet

Thank you so very much for thinking of me and remembering my appointment. I can't tell you how touched I am.   My ultrasound is tomorrow.  I am still awaiting the results of the biopsy I had on the 5th April. They told me those results would take two weeks. Due to the Easter break I'm hoping I hear something today or tomorrow with the US also tomorrow.  Since you reached out to me I have not googled or researched anything as your positive and supportive words were all I needed. However the last few days have been a challenge and I was in bed with a migraine yesterday no doubt due to the stress.  Thankfully I haven't bled since the original five day bleed so I'm hoping that's a good sign.

I hope you are coping with the trauma and turmoil you have been through these last few months. Even though you got the right results I have no doubt the worry and anxiety will have had a profound affect on you.

I'm not used to discussion forums and your last message did not allow me to reply in the way I had previously so I really hope you receive this reply.  I am so moved by your kindness. Thank you. I will be in touch with my news.

  • Hello 

    I have literally just been through this process and I know how scary it is

    i have been on HRT since 2015 ('m 53) and for the past couple years, continuous hrt where you don't bleed. I started spotting out of the blue in January and didn't think much of it as not uncommon to bleed on hrt. When it dragged in into Feb I went to the Dr ( or spoke on the phone!) and was referred for the 2 week wait for urgent assessment. I was very scared. Too much googling and forums and reading about cancer convinced me I would be facing that outcome. I had a biopsy (not painful but uncomfortable- take a paracetamol an hour beforehand) and then the scan a week or so later. I was eventually told I had a thin endometrium and needed to modify hrt. Just waiting for that appointment. I stopped hrt a couple of weeks ago through my own choice and will decide whether to have a coil when I next see the GP. It is a scary time but the overwhelming majority of women have nothing to be concerned about and my research revealed that women on hrt were even less likely to develop womb cancer. PLease try not to worry. The sonographer won't tell you anything at the scan so don't read anything into that. You should hear within a few days - chase the GP up if you don't hear within a week.

    Take care of yourself and keep busy and I wish you all the very best xx

  • Hello Greenvelvet,

    Thank you so very much for your heartwarming and reassuring reply.  After reading it I have felt the best I've been since this saga began a week ago today. I am so pleased for you that your situation was down to HRT and not worse case scenario. What an awful start to the new year you've had and I can sense the turmoil you have been through. That's exactly how I've been this week. Awaiting the biopsy results and the ultra sound appointment are taking over my life and I am consumed with anxiety.  I am trying hard to be positive and hope this is all down to an increase in oestrogel this past two months.  Like you, if it is down to adjusting my HRT I am seriously considering coming off it altogether.  I struggled for 10 years having had a premature menopause before I decided enough was enough and went on HRT. It is such a trial and error situation finding the perfect strength and I wish you every success as you decide what to do next on the HRT journey.  Once again thank you for reaching out and offering me some calm and wise words, I cannot tell you how much it has helped me. Wishing you continued good health and happiness. Take care.

  • That's so nice of you to say. I read your post  and it felt like something I'd have written. The worry took over my life to the point that when the daffodils came out, I was wondering whether I'd see them next year. The fear of cancer is horrific. I sense that I need to get some counselling or talking therapy to manage it as no one knows what is in the future, and we all need tools to cope. My Nan used to tell me not to meet trouble half way. She was right but it's almost impossible! Take care and sending you my very best wishes for a good outcome. Let me know. Sending a virtual hug x

  • Hello and thank you for posting. I'm sorry that you have been going through this tricky time. 

    It can of course be a worry when waiting for tests, scans or results. And the only thing that can help is keeping yourself occupied to help time pass quicker.

    Post menopausal bleeding is always looked into to ensure things are thoroughly checked out, but I appreciate that doesn't make you feel any easier about it.

    Other forum users may come forward with their own experience's, but do also remember these will be situations individual to them and not everyone is the same.

    Take care, and I hope you get more information soon.

    Sarah.

  • Hello

    i remembered you would be due your scan soon and wishing you all the very best for a reassuring outcome. I know the time passes very slowly whilst anxiously waiting for tests and results. Do speak to your GP if the worry id affecting your life - they will be able to help at this time if you reach out to them X

  • Hi Greenvelvet,

    what can I say? Thank you so very much for thinking of me and remembering my US appointment which is today,  I can't tell you how touched I am that you thought about me, It's really lifted my spirits.  Apologies for the late reply I think the site was down yesterday and I was unable to post,

     

    My current situation is US this morning.  Unfortunately I am still awaiting the results from the biopsy I had on 5th April,  I called the hospital yesterday to be told my Consultsnt is unfortunately on sick leave and his secretary on annual leave so my results had not even been looked at,  So I am at a loss as to when I will receive them,  Since you reached out to me with your positive and supportive messages I haven't felt the need to go online looking for information etc as your messages had given me much comfort and encouragement,  Previously I had spent hours and hours reading up and at the same time terrifying myself. However as the biopsy  results are now going to take longer than they should, I am now filled with anxiety and dread once again.  The positive news is that I have not bled since the original bleed of five days and also since I reduced my Estrogel down to one pump, I'm hoping that's a good sign,  I have to admit its now taking over my life once again,

    I hope you are beginning to find some strength after the trauma you've been through.   I can imagine the fear you will  have felt will have had a profound affect on you,  If you feel counselling is something that would help you then I would most certainly consider it. 

    Anyway as soon as I have any news to share I will let you know,  Thank you once again for thinking of me. It really means a lot to me and I was stressed not able to reply yesterday to thank you for your kindness. 
    You enjoy your day, The sun is shining. Bye for now,

  • I hope the scan went well 

    do speak to your GP. My biopsy results were visible to the GP long before I had the letter from the hospital. I had that letter last week and the biopsy was 5th March so a long time but the GP told me things were fine at the end of March 

    as the nurse moderator said they always check into bleeding very carefully and that is a good thing. It's incredibly worrying though. I am sure you will hear from the scan very quickly but call your GP next week if you are anxious as they may have news and will be able to support you in terms of worrying if not. The nurse is right that everyone has a different experience unique to them and I hadn't realised this forum was more for nurses than the general cancer chat but I'm glad I was able to offer a little reassurance from my own experience. Do keep o  touch and thanks so much for your good wishes. I am feeling much brighter but have an appointment next week to discuss my anxiety and how I did or didn't manage the whole worrying process. X

     

  • Hi Greenvelvet 

    Scan went exactly how you said it would. They didn't say anything except results would be sent to gyne.

    I am amazed that you only got your own results back from the hospital last week. Thank goodness your GP was able to put your mind at rest. Can you imagine having to wait all this time! After you experience, I most certainly will contact my GP although when I did yesterday they advised me to contact the Consultants secretary. Thankfully she is back from annual leave tomorrow so at least I maybe able to find out if the results have now been looked at.   The Consultant told me after the biopsy he would write to me and my GP within two weeks but as he is off sick I have no idea when I will hear from him,  I'm hoping someone else is covering for him whilst away. Hopefully his secretary will have some news tomorrow. I'm dreading another nerve wracking weekend ahead and trying to keep calm and not let on to my (grown up) children it's now  becoming more of a challenge.

    I'm so pleased you have an appointment next week and hope it can lead to you finding some peace of mind,  You have given me so much encouragement and support in your messages whilst having this wait I do  you find what you need in order for you to move forward and get back to how you were before your awful experience began.

    Ill be in touch. Thank you again for your support. 

  • My children were supportive - both mid/late 20s

    at first I didn't say anything but I realised they would be horrified I kept my worry from them as we try to be supportive to one another. My daughter especially was very calm and reassuring. I know you won't want to worry them but I suspect you are always there for them. At times like this it's really ok to let your family support you.

    I think the secretary will understand your extreme anxiety and if she can help I'm sure she will. If you get no answers then speak to GP. Explain that the worry is escalating and ask if he/she can get some answers as soon as possible. Point out the impact on your mental health and well-being. It's ok to be honest with health professionals how we are feeling. 

    good luck  

  • Hello Greenvelvet,

    I have been able to speak with my consultants secretary today and the good news is she could tell me that 'nothing sinister has shown up' in my biopsy or ultrasound.  They have however arranged for me to have a hysterscopy  next Thursday (due to cancellation) she said I could have it next month as 'it's not urgent' but I've accepted next Thursdays appointment.  Unfortunately my consultant has left the trust so it is the new  Consultant who has asked for the hysterscopy. She assured me that if it was anything serious I would have been notified by now and the hysterscopy is to check for  perhaps a small polyp , Obviously I am relieved the biopsy and US were clear but am concerned about the reasons for a hysterscopy, which I've had before and I know isn't pleasant,  I'm also grateful to have it so soon considering I was told it was not urgent,  I just can't help feeling anxious about the whole situation when I have nothing in writing regarding my results and nor does my GP. I only have the conversations with the secretary to rely on. Do you think this is normal?  Are you aware of what can be found in a Hysteroscopy? I am reluctant to start googling again as I can't take the anxiety again.  I'm concerned that although there was nothing sinister found in the biopsy snd US, something may come up in the Hysteroscopy? Did you have all three examinations, biopsy, ultrasound and Hysteroscopy?

    I hope your week has started well and you are feeling calm and more at peace with your anxiety until your appointment later this week.

    Take care