Hi,

Thank you so much for your kind words.

Yeah, tell me about it! NHS don't give much information but I have to chase and request a copy of reports!

I can totally understand the pain of not knowing what's going on.I hope you get the update soon,and all is well xx

Now coming to my MRI results, well, they say its pretty much the same , such as vascularity etc but now the size has grown up a cm in 3 months! Which is concerning and it shows restricted diffusion( something to do with water molecules)

Been booked for biopsy in 4 days , CT scan in 12 days!

It has been discussed in MDT, soft tissue specialists.

I'm all over the place right now.

All I think is, about my kids!!! Wanna see them grow, prosper and ,have families of their own...Wanna give them my love, comfort , warm hugs,Wanna be their strength,rock, their best friend,their well wisher...wanna serve them hot food, make their favourites, laugh with them,play with them,listen out their hearts and tell them I'm here for you ,no matter what..Gosh!

May God me strength to overcome , what ever may come.In the end, We all shall meet again in Heaven.

May be I'm thinking too much??

Hi Songbird, 

Thanks for getting back.Sorry, I was overwhelmed with emotions yesterday.

What is it that you found out about Ferratin? You mean high doses could be the reason for the cyst? I hope all is well at your end xx

I do know fibroids can grow very large snce I have been through that , reaching upto 17cm few years ago.

This time around , well its in the iliac fossa, with couple things on the MRI,which are bugging the docs.

I do have 2 uterine fibroids, fairly small upto 3cm.This mass doesn't seem to be broad ligament fibroid, as I'm told now.

There have been few discrepensies in diagnosing between the PACS.

They opted for biopsy in the end!!

Hi Hope,

I have had high ferritin levels in a blood test post op - their 'normal' level is 150. In a year mine has gone from 151 up to 222 - so it's gone up quite a bit. It's not due to the cyst as that was removed well before this blood test. I did a general health check as I just run out of steam a lot of the time - found out my vitamin D levels are low for the time of year and high ferritin as well as a few other issues. The cyst had contained a lot of iron storage cells as well as inflammatory cells - so this is why I am going to get this second test done to check my iron levels as well as my vitamin D to see if the suppliments are helping. I have given copies to my GP's so they are aware of what's going on. 

I am sorry that you have such a load of worry at the moment - I know everything will be going through your head, and noone will be able to make that go away until you get some answers from the meidcs. Unfortunately results can take an age to come through - and that doesn't help. The good thing is a biopsy will stop the guessing - and if there is a need for swift medical intervension then that will be done. As a rule of thumb the longer results take, the less likely it is to be anything serious (doesn't make it any better for the patient though - you still worry until you get your results) I hope you have someone close you can talk to - it helps to share your fears. I bent my hubbys ears a few times, I worried I had a sarcoma as my MRI and ultrasounds could not tell what my cystic lesion was for sure.  They would not do a needle biopsy and decided to remove instead. The results took for ever. I felt like my life was on hold for months!  You could say now it was wasted time - but until someone tells you otherwise you can't help but think the worst. I hope you don't let your fears stop you doing things that make you happy or forget your health worries for a while - yes it's OK to have tears and be angry and think - why me? but there has to be a time to smile too. Sending hugs xx

Hi Songbird,

Hope you are doing well.

Well, hope that GP will consider everything you have said.

I had 3 biopsy samples taken yesterday.

Spoken to the radiologist who was there to do the procedure, and saw my MDT report on the system too.sometimes doctors don't tell clearly what exactly was discussed in the MDT meeting.

They are also thinking of Metasized Neoplasm of Papillary Carcinoma.(Hopefully spelled it correctly lol) I'm currently under observation of Thyroid cancer and blood work seemed to be fine earlier few months ago though. It was still there in couple of lymph nodes after the radioiodine ,FNA biopsy was taken and confirmed. they weren't sure if its the burnt out after the treatment thing? If that's makes sense?Although the size got a lil smaller than before.

Recieved a letter in the post, a copy of MRI and the remarks which was sent my GP as well. It mentions that they had the meeting with Gyneagolosts MDT and Soft Tissues MDT and decided to opt for biopsy. Since the size has enlarged and coupled with more findings, it is suggested to go with surgery even it's risky.

They await for the biopsy results then take it from there.

Hopefully all will be well.

Thank you for getting back. Hope your life will be going smoothly x

By the way, I'm 39 years old x

Hi Hope,

My goodness me you are going through it right now. I hope you won't wait long for your results. It's always better to know what you are dealing with whatever it may be. Please let me know. Take every day as it comes and look after yourself xx

Hiya,

Thank you so much for your kind words.

I will keep you updated x

I was told , results will be here in a week, so let's see.

Take Care x

Hi Hope,

I am glad they are not hanging around! Sounds like you have a good team behind you xx

Hiya both,

Has there been any update? Currently in a similar position.

Hope your both okay xx

Hi TashaLxN,

I have not heard from Hope2022 for a while. She would probably be the best person to contact. I am just a person with lots of weird symptoms and awfully good at growing large benign growths who seems to wake up at stupid o'clock on a fairly regular basis! It's not funny when you are worried about something that is potentially a very serious situation, and I have 2 very dear friends who both have cancer at the moment, so I fully understand what that can do to your headspace!

What I experienced was not a cancer - my fibroid was a monster though (was the size of a coconut) - so I had a hysterectomy as there was no other way to get rid of it. It caused a hell of a lot of problems at the time too.

I hope you are getting the support and love you need to get through this xx