Bit of a rant sorry. I was being investigated for possible ovarian cancer which has been ongoing for 10 months after various ultra sounds ,scans and failed biopsies. I had my recent biopsy the end of January and was told over the phone I had cancer. The nurse came out with some big long words and when I asked for more explanation she said she didn’t have any as it was so rare.  The gynae team them washed there hands of me as it wasn’t a gynae issue but a colo rectal one and said they will refer me. 5 weeks later I have still had no conversation or appointment and after making an absolute pain of myself by phoning the  number I had every day I was finally told my case had been referred to a hospital 2 hours away as my local hospital has never dealt with this cancer. Then I found out someone had not signed a form so I was not actually refereed but hopefully will tomorrow.

anyway sorry rant over but if anyone has any details on my rare cancer can you let me know. Even Macmillan couldn’t help me. It occurs to 1 in a million people per year so by my reckoning there must be about 60 others who have this. For info it is a low grade carcinoma of the peritoneum in the gastro intestine.  I told you it was wordy!