How quickly do you need to treat terminal lung cancer?

My mother has terminal lung cancer, stage 4 NSCLC with an EFGR mutation (I will never get those letters in the right order but I've a vague notion its about the epithelial growth?). She's suitable for osmertinib and due to start that in a week or so.

For different reasons, what should have been a diagnose and treat situation has been delayed, and we are now 2 months out from initial diagnosis. From reading up on it that sounds like mum's care is beating targets, and I'd just like to put on record that the hospital has been great and I wouldn't criticise them for the world. The delays have been caused by other external factors, and there might be more of them.

So my question is, at a stage 4, with the lung cancer spread to the spine and the lymph nodes, how long can we afford to wait before starting osmertinib, and does the delay impact its chances of being effective?

I have read that the average lifespan without treatment is 0.2 - 11 months. In that context, I feel like every week that goes by is putting her at risk, but that's just an assumption on my part. It's hard to find data on that specific question, so I'd be really grateful for any information. 

 

  • Hello and thanks for your post,

    I am sorry to hear about your mother's situation and the delay in starting her treatment.

    I can understand how frustrating it must be when there are delays that are beyond your control.

    I am afraid that it is difficult without being involved in your mother's care to know how long she can afford to wait for treatment. Every one's situation is slightly different, as well as the stage of the cancer a lot will depend on your mother's general health. For example how well her kidneys and liver are working, whether she is eating and drinking whether she is mobile.

    All I can encourage you to do is to speak to her oncology team about the delays and the worry that it is causing you all.

    There is PALS (Patient Advice and Liaison Service) which you could get in touch with at her hospital. Have a read about what they do here

    Macmillan have a page on Osimertinib which you might like to read about here

    We do have a page on our website about living with lung cancer which you can see here

    I do hope that your mother is able to get more information about when her treatment will start. If she has a lung cancer nurse encourage her to speak to them.

    If either of you want to ring and speak to the nurses on the helpline then you are more then welcome to do so. The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    All the Very Best,

    Catherine