Still worried

Hi all,

My daughter who is 25 (24 at the time) had a smear that came back borderline changes.  She was refered for a colposcopy.  At the time the nurse who done it said she thinks it is cin2 and took a biopsy.  When the test came back they said they had conflicting results as she also has some slight errosion, so it went to an MDT meeting as the biopsy showed cin1 but the colposcopist says cin2.  They decided on it being cin1 and for her to go back in a years time Aug2022.  I can not get it out of my head that what if the MDT got it wrong and just went with the biopsy results and said cin1 instead of maybe having another biopsy to double check. Or maybe if they could of had her back for a check up in 6 month which would of been due now instead of waiting another 6 month.

 

Am i being silly thinking like this. I just know alot of medical investigations are missed thats all :(

  • I don't know if this may help but when I was 24 mine was CIN 3 and I then found out I was pregnant so had to wait till my son was born. Remained CIN 3 and I had surgery and then smears every year for 10 years all of which were clear.

    im 43 now and always been clear since. I did get endometriosis and I have a gynaecologist referral just waiting for an appointment.

    so it takes a very long time before they progress it's pre cancerous and not everybody with them untreated would get a cancer diagnosis.

    it's worrying and hard to forget about but they are very good the colposcopy nurses 

     

  • Hi and thanks for posting

    CIN 1,2 and 3(mild, moderate and severe) are all abnormal cells , not cancer. If they were left untreated for 10,15 years they would have the ability to progress to cancer, but the point of the screening programme is to check smears regularly, to prevent this from happening.

    Biopsies are the best way to check the cells and it's also good that there was an MDT discussion. Biopsies are not usually redone to double check, especially as your daughter is being checked up again in a years' time. 

    Though I can appreciate you may have been worried by this result, abnormal cells are very common and easily treated if needed. Most CIN 1 cells will revert back to normal, though sometimes they can remain. If the next smear still showed some abnormal cells that were CIN 2 and over, needing them to be lasered, this is still not cancer and does not increase her risk of cervical cancer in the future. So long as she attends all her smear appointments, this will reduce any risk of cervical cancer.

    Do give us a call if you would like to go over any of this with one of the nurses here on the helpline- Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    All the best and try if you can not to worry.

    Wanda