Hi, Diagnosed TNBC left breast 1.5cm and some nodes 2 weeks ago.  On Apixaban since PE, (after 5mths bleeding then PE) in 2020.  Same pain again twice. Both resolved themselves while waiting in A+E.  First time let go told it's a pulled muscle or anxiety, 2nd it's pancreatitis caused by small stone moving to pancreas. Pain was the same all 3 times, but no CT of chest taken after 1st time.  It's taken some time to get my head around clotting issues are caused by cancer, although in myself I knew at the time and posted it on here as a reminder to myself.

Now what I think is a clot is sitting just to the left of my mid spine.  It's pressure not pain.  Last week it  was higher with a very strong trapped and then bursting sensation.  I've felt it move down my back for months. I found the breast lump myself in November and may have missed it before as I intentionally lost 50lbs after the first PE. I'm now very slightly above my BMI but should be right soon.  Also sporadic pain in both arms and sock, band sensations (calves down and chest).

I've seen my oncologist once when he gave me "the plan" 12 weeks of paclitaxel and carboplatin, doxorubicin and cyclophosphamide (AC).  I didn't have the questions to ask him then cos I knew nothing.

CTs and bone scans ok, but they want me to have an MRI, US on liver and have not done BRCA testing yet.

Today I was in for pre chemo and I couldn't consent. Even though I know it's right for TNBC and sooner the better, it isn't sitting right with me.  I'm concerned about my clotting and cardio position before getting chemo.  I'd expected to talk to the oncologist again before treatment.  Mentally, I'm a musician who walks a mountain every morning and I am afraid of living with less quality of life, ie. cardio problems and peripheral neuropathy.

So, I've lost my place and I've not heard when the oncologist will speak to me.  The chemo nurse today said I'd probably not have the tests done before seeing him as they could take 10 weeks.

I'm searching all this stuff on my own and I've got tired.  My parents are in the UK (I'm in Ireland) and it has been suggested to move my care to there.  Just wondering what your take is on all this?  I'd always said if I got really ill I'd go back to the UK and yet here I am.