Dad has brain tumour and I’m so confused

Hi, I am just looking for a space where I can talk about everything that has been going on these past few months. My dad had a seizure in October 2021 and we were told straight away he had a brain tumour and they needed to do a biopsy. Hospitals being busy during covid they sent him home to await a biopsy. However he contracted covid during the few days he was there and was admitted again. Having COPS this was a tough time and we almost lost him, luckily after 5 weeks we managed to get him home. There had been no mention of his tumour in the meantime just that he was too unwell to attempt the biopsy. Fast forward a few days and we were told by the local GP that my dad has terminal cancer, brain mets with an unknown primary. As you can imagine this was a huge shock to us and dad had not said anything (he claims he was never told or he may have forgotten) 

my confusion comes from where we are now. I was told we had weeks left with him but 7 weeks on he seems better than ever. I'm aware steroids are masking some of the symptoms. He lost use of his right side and has become confused. He has since had more scans and this week we were told there is no other cancer in his body just his brain and they want to proceed with the biopsy if he is well enough. My question is how can they tell it's cancer without a biopsy? Is it possible if they got it wrong that he had another primary cancer that they are wrong about this? Or is the fact it's growing in a short space of time an indication? 
I'm so confused, he's only 58 and I'm struggling to figure out what I should be doing right now. My best friend lost her mum before Xmas and I would usually talk to her but I don't feel like I can. Thank you in advance and sorry for ranting!

  • Hello and thank you for your post,

    I am sorry to hear about your dad and his situation this must be a such a worry for you all.

    Sometimes a brain tumour cannot be biopsied, this is either because the patient is not well enough or that the tumour is in a place that makes surgery very difficult or not possible. In some circumstances then a diagnosis is made by neurooncologists with the scans. Unlike most other cancers a biopsy is not always needed to know if someone has brain cancer.

    Your dad has been through a lot and it looks like the original plan to biopsy was put to the side because of COVID and how ill your dad became with it. Because he is better they are now thinking they can biopsy. If they can get a biopsy this will give more information for example if this is a primary cancer or cancer that has spread from another primary cancer.

    I am also sorry to hear about your friend and I know you might find it difficult to talk with her but you might find she wants to listen and help. So do think about letting her know. 

    I hope you know more about your dad's situation soon. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care,

    Caroline 

  • Thank you so much for your reply. Having some answers to my questions really helps. It's such a tough time but fingers crossed in a few weeks we will know more.