Reoccurrence

Hi there 

Ive just been diagnosed with grade 2 lobular cancer for the second time. The first time was around 12 years ago at which time i had a bilateral mastectomy, diep reconstruction, chemo, radiotherapy and they also found early stage ovarian cancer so i had a hysterectomy to. I was 35. 

So it was a shock to me that it came back in the form of a new lump, thr lump os marble sized and right in thr middle /cleavage area of the reconstructed breasts. 

Its obviously been a shock and an anxious time but having had a CT scan, it's showing no spread thank goodness. 

My treatment plan is essentially to do a lumpectomy. Normally they would follow up with radiotherapy, but as ive had it before apparently is doesn't work. But thr breast cancer surgeon said he woukd check because of the position of thr new tumour may be outside the area of past radiation but hes now just saying im nit getting it. 

 

Ive so far met with breast cancer surgeon who wants to do the surgery under local. Which im ok about as it avoids complicated recovery. But im also worried as ive has a reconstruction and i feel pain in complex ways like if i touch one area i will feel it actually on the other side of of my breast etc and even though i had local anesthetic for the core biopsy i still found it extremely painful is that normal.? 

My breast cancer surgeon has told me no one from oncology was actually present during my treatment planning meeting. 

Ive not met anyone from oncology is this the norm at this point? 

He said if there's clear margins i wont need chemo. Which is good news but im worried about it coming back. 

Sorry for  all the questions. 

 

  • Hello there and thanks for posting

    I am sorry to hear of your recent diagnosis and appreciate you have some questions.

    If someone has had radiotherapy in the past to a particular area of the body then further radiotherapy treatment isn't usually recommended as it is likely to do more harm than good.

    Everyone's pain threshold is different and some people do feel pain more strongly than others. Local anaesthetics should numb the area in which the procedure is being carried out so people shouldn't be in pain if this has been done properly. It is important that patients should say if they are in pain or uncomfortable at all so further anaesthetic can be given. You can read more about this here.

    Usually patients cases are discussed in a MDT Multi Disciplinary Team setting where all cancer specialists come together to discuss the treatment plan and this often includes an oncologist, so I am unsure why this wasn't the case for you.

    As the surgeon has said if the margins are clear you may not need chemotherapy and therefore at this point in time there may be no need to see an oncologist, but do ask about this when you get the chance. There is information about breast cancer recurrence and treatment here that may be useful to read.

    I understand your concern about the cancer coming back again for a third time so do make sure you have also shared this worry with your team, so you can understand your situation better and what treatment may or may not be needed to reduce this risk.

    I hope this is helpful but do get back if you have more questions or if you prefer call the nurses on 0808 800 4040, we're here Monday-Friday 9-5.

    wishing you all the best

    Naomi