Mouth cancer reoccurrence.

A lot to say but   2018 1st cancer ,full big op,Radiotherapy 2020 diagnosed again at routine face to face appointment (Thank you nhs)since then had all the tests which came back positive. Also 2x operations to try and cut out .The 1st didn't work .As it stands now waiting on results for 2nd op,which was done 2 weeks ago .I have a appointment in another 3 weeks with my surgeon. Thing is dont think I am coping in the waiting game again .Would it be wrong to ring maybe his secretary or my nurse to see if there was any results. During these 2 ops have had great difficulty drinking and eating the small amount I would manage over the last 4 years .I cannot have anymore Radiotherapy, so my next if needed only operation would  involve making a new jaw out of the bone in my leg ,with the possibility of never again being able to drink or eat again .If it comes to this very unsure if I will do .Its been hard enough the last 4 years taking away my quality of life .Advise ring or not  ,this all been going on since Oct 2020 .The day it was confirmed was the same date I had my operation 1st time round .Thank you .I am on the very edge now ,shaking and twitching  and very withdrawn .Thank you again 

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  • Hi Markovic,

    I'm sorry to hear about your struggles. I had two separate tonsil cancer occurrences (2018 & 2019) and am currently in the watch and wait phase.

    I don't think it would hurt to give the secretary a call in the circumstances. If the results are not yet available, and if you explain how anxious you are, the secretary might be able to give you a contact number for someone who can prescribe some medication to help calm you while you wait, or she might refer you to your GP for the same.

    Best wishes.

    Tim
     

     

     

  • Thank you for your reply .The waiting game is horrible. I do not want to go down the medication route as I already take way too much in my opinion. Most of which is for 1st cancer and treatment side effects .I have contacted the nurse for advice .Thank you again and good luck. 

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