Hello Mariaz and thanks for posting, 

I am glad you called to speak to us as well so we were able to talk this through.

To re-cap, Paget's disease is rare and can affect the breast nipple and other parts of the body (scrotum, vulva, armpit and around the anus) when it is called extra-mamary Paget's disease or EMPD for short. 

In Paget's disease abnormal looking cells are seen in the skin. You may have read that EMPD is often referred to as a neoplasm which means a new and abnormal growth. Neoplasms can be benign (non cancerous) or cancerous. 

EMPD can be primary when the abnormal cells are skin cells or secondary when the abnormal cells are thought to have have spread from a cancer near by, for example from the bowel or bladder. Although rare, primary EMPD is more common and is usually a pre-invasive (pre-cancerous) skin condition. A hallmark of a true cancer is that it can grow into (invade) adjacent structures. So as primary EMPD is mostly pre invasive it isn't classed as cancer. 

It might help to read a leaflet about it at the website of the British Society of Dermatologists' website, click on the link below to download it - they also have a leaflet on Imiquimod which is a treatment option.

www.bad.org.uk/patient-information-leaflets

I hope this helps, please do get back to us if you have anymore questions. As you know, you can call to talk things over weekdays, 9-5 on  Freephone 0808 800 4040. 

Best wishes, 

Julia