Letrazole - stopping

I have taken Letrazole for 16 months

i am prescribed this for 5 years but am really really  struggling with body and joint aches

if I stop now what risks are there - having taken it for some of the prescribed time I wondered how much my risks of recurrence is affected

 

 

Parents
  • Hi and thanks for posting

    This isn't an easy one to answer as risk of recurrence will depend on factors such as size, grade, HER status and whether it has spread to the lymph glands. Your specialist will be the best person to discuss risk of recurrence as they will have all your details to hand.

    Many people do struggle with hormone therapy and I hope that you have been able to discuss your side effects with your breast care nurse and specialist. Side effects can sometimes be helped by changing over to another type of hormone therapy such as tamoxifen, or another aromatase inhibitor like arimidex though arimidex can also cause painful joints. Everyone is different and one drug sometimes suits someone better than another.

    Hopefully, you have also been prescribed a combination of calcium and vitamin D which can help with aches and pains in joints and is commonly given for people on letrozole or arimidex.

    Taking regular painkillers and exercising like swimming and walking  regularly  have also all shown to help . There is some more information here on looking after your bones and joints  

    Hormone therapies have ben shown to continue to work after stopping after the five years, but it would be difficult to say what effect they will have had after 16 months, especially as the factors mentioned will also potentially affect the result. Sometimes, the specialist may suggest a short break off the drug to see if you notice any difference.

    I do hope you get to talk with your specialist about this and that things will start to settle down for you

    All the best

    Wanda

  • Thank you so much

    i do take Calci D and also Tumeric and black pepper capsules and Glucosamine tablets 

    I am grateful for your comments

     

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