Hello and thank you for your post,

I am sorry to hear about your situation and I can appreciate your concern about what to do with starting your treatment again.

Unfortunately this can happen, not just to people on the same treatment but with other treatments too. Once the patient is better the doctor and patient then have to make a decision about restarting the treatment and see what happens or to not give it all . Being asked to make the decision I know is very difficult. Unfortunately no one can tell you what will happen with any certainty in either situation.

You do need to be guided by your specialist team. They will have a much better understanding about what benefit there is for you to restart as well as the potential for risks. It might also help to talk with your specialist cancer nurse about this too. You might want to know what measures will be out in place if you were to restart and you became unwell. This might give you some reassurance.

What do the people closest to you think?  I am not sure if you will be able to get someone with the same or similar situation, if you are it might help you come to a decision. So if you are asking other people do also post this in another area on the site, you will see a list to the left of this page.

You would also be welcome to give us a call, you may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Take care,

Caroline