Lump in neck for 4 to 5 years..

Hi there I'm looking to see if there's anyone that's been in a similar situation to myself, I'm a 23 year old female that has a 2 inch hard smooth immovable mass in the right of my neck that literally sits where my carteroid artery is (you can feel the 'mass' pulsating), I have been to the ENT 2 times in 5 years  (once in 2017/2018 and once in 2021) because of this and had blood tests- came back normal and 2 ultrasounds again everything looking - normal, and even had a couple of doctors say they can't feel the 'mass' that I clearly cannot ignore for all of these years or that it's my pulse but it is considerably huge and there in no lump or bump in the left side of my neck at all, I feel completely helpless, I'm constantly tired (but also suffer from depression which could be the cause) and feel ran down and also get weird sensations in the right side of my throat that can only be described as static and always feeling dehydrated, it's been such a long time having this lump in my neck that I'm scared if I get a diagnosis I'm going to be irreversibly ill and feel like no doctor is taking me seriously. When I went to visit the ENT for the second time he even commented 'we looked at this before and I can't see anything' - very irratiably said. I would NEVER try and waste valuable doctors time for something I didn't think was there this is my only health concern I feel like I am going crazy I can feel this lump in my neck I don't know where to turn now. Do I pay for a private MRI/CT scan or what should I do, I went to the doctors yesterday she said she couldn't feel it (my head was tilted down you can only feel it when titled up) and she wouldn't feel it when my head was up and said she wouldn't refer me for further help and I should try getting help for possible anxiety for this lump instead of getting help for the lump itself. I'm having panick attacks and crying over this what do I do please. My main panick is because I used to smoke for a couple of years and given myself cancer from that. I'm in bits no one is taking me seriously:(

  • Hi.

    I think you need to get a second opinion.

    It sounds as though it might be a lymph node that's swollen. I'm currently going through tests as my ENT consultant suspects I have lymphoma after going to my GP with a swollen superclavical lymph node. The mass that I have in my neck can change throughout the day, and depending on what position I am sitting in too, sometimes it's less obvious, so your GP shouldn't be refusing to check you properly. 
     

    the fact that you've had it for 4/5 years though and you haven't had any further symptoms is hopefully a good sign. 
    I would defo ask for a second opinion and if you feel like you aren't getting anywhere with your NHS dr and you can afford it, get a private consult, just to put your mind at ease.

    The mind can cause no end of worries and if you have anxiety too you may experience symptoms that aren't really there, they are real but the cause can be in the mind, Although I think actually feeling a mass is quite hard to imagine. 

    Have you considered trying something like Yoga to help calm your anxiety too. I say this as an anxious yogi ‍♀️ too.

    I hope you get some answers soon and feel more rested.

    good luck x

  • Thank you so much for your response and I'm also so sorry to hear that, my fingers are crossed and I pray for you that, that won't be the outcome for you. Thank you for validating my experience and I'm definetley going to take your advice, I'm calling the GP one last time tomorrow and then will go private if needs be. Definetley going to try yoga again that is a great way to stress relieve so thanks for reminding me, also glad it helps you, anxiety if the worsttt!‍♀️I really appreciate your reply and would love to have a update on your situation if you're comfortable to do so, wish you only the best in life and health for the future x

  • Hello and thanks for your post

    I’m sorry you are worried about a neck lump that you’ve had for some time. I would like to be able to help, as clearly this is causing you a lot of worry, but it is not really possible for me or anyone else here on the forum to give you a diagnosis. Even if someone had similar symptoms it does not mean that their situation is the same as yours, as symptoms can develop for a number of different reasons. So, their situation may not be the same as yours.

    A neck lump can be due to various reasons, such as a local skin infection, or a blocked or inflamed lymph gland (lymph node). Sometimes lymph nodes come up in response to a recent bacterial or viral infection elsewhere in the body. It can take a long time for them to go down and sometimes they might not go back to their original size.

    I do think that because you were seen by the ENT team and had ultrasound scans  you should be reassured. I say this because they are experts in these conditions.And at the time you had the neck lump scanned, it didn't come back as being a cancer. If the doctor was at all concerned about this they would have discussed this with you.

    The difficulty is then taking on board what that specialist or health professional has said and being able to try and move on. As you’ve previously mentioned this has now been present for 4 or 5 years, so I think you can probably assume it is just a part of your normal anatomy.

    Health anxiety can be very debilitating and it can have a very negative impact on your quality of life. I am unsure if you have asked your GP for help with this, if not do ask. I don't know if you are aware of an organisation called  Anxiety UK.  They are a national organisation who help people with anxiety. You may also find the NHS Every Mind Matters website helpful as they have a specific section about anxiety.

    I hope this is of some use.

    Kind regards,

    Celene

  • Thank you so much for your response Celene, I completely understand it's impossible for you to help with a diagnosis. I guess I'm just using this as a place to panick whilst waiting, I went back to my GP and explained my worries it's completely ruining my life I feel sick, itchy and can't eat because of this. He confirmed he could feel the lump which he confirmed wasn't my thyroid, pulse or muscle but was in fact a lymph node, which he believe is 1inch long, (I think it's 2inches but appreciate it's harder for someone else to also feel and I stick my fingers into my neck hard) he's told me this is a normal size and they normally don't worry until they reach the size of a golf ball? I've been reading about peoples understandable worries at a pea sized lump so how I've been told having a hard rubbery 1 inch lymph node really hasn't calmed me down. He's contacted the ENT department again if they'd 'entertain' another type of scan to me, I feel the doctors where I'm from think I'm just trying to waste their time but this is Absolutley petrifying for me I'm fully convinced I have what I'm most scared of and I feel awful saying it for those that have been diagnosed but there is something completely off about how I'm feeling and I still feel helpless. I've been having panick attacks, waves of sickness over worry and get in hysterics even thinking about it it's 3:46am right now and I'm sick with worry that I've left it too late already I don't know what to do with myself and can't afford private help right now. Sorry for the ramble honestly just beside myself x

  • Hi. 

     

    I was wondering if you ever got further with this? Or any results? 
     

    I've got something similar going on. I had some random blood tests the first I'd had in my life had them as I was starting to get health anxiety (due to losing my dad not me having symptoms) which showed my neutrophils to be a little low. This was just over 2 months ago and drs aren't concerned and am waiting for the heamatologist. 
     

    however just after the first blood test and reading online about lymph nodes I remembered the small lump on the back of my neck. Had it since I was young around 14 so maybe closer to 10 years now. It's small I think it's hard but since the first test I've had the dr feel it multiple times 2 different Doctors and they've said it's nothing to worry about. 
     

    jusr wondering how you got on if don't mind me asking. Thank you 

  • Hello there

    I know you have posted this question to the person who started this thread however they may not get back to you as it has been a while since they communicated on the forum.

    I am sorry to hear you lost your dad to cancer and appreciate this has made you more aware of your own health.

    Lumps and bumps can appear in the body for all sorts of reasons. Commonly caused by infection that settle with time but in other cases it is a normal part of our anatomy and nothing to worry about.

    It is good to hear you have seen your GP who isn't concerned. They are trained to spot red flags and i'm sure if there had been any suspicion they would be arranging more tests.

    In regards to blood tests coming back out of range once again these can be caused by various factors so try not to overly worry if you can.

    AnxietyUK have some useful suggestions here.

    Hopefully you will see the haematologist soon and your mind put at ease. If on other other hand they need to do some more tests then you'll be in the right hands for this to happen.

    Wishing you all the best

    Naomi