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LS diagnosis and anxiety about vulva cancer

emily236
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I'm 36 and also just been diagnosed with Lichen sclerosus. It started with itching and pain and tenderness at my clitoris and I noticed a sore there too. That was back in September. I had an appointment for a biopsy after I saw the GP (who at that time didn't mention LS) in October but that was cancelled. The sore is still there and I'm still waiting on an appointment for my biopsy. With this new diagnosis I've started reading about LS and am now petrified that the sore that won't heal is cancer. I still don't have an appointment for my biopsy but I have now started steroid cream. Has anyone had a similar experience where the steroid cream has cleared up the LS or improved the broken skin on the vulva? I'm a mum of two small kids and all I can think about is the worst case scenario. 

Parents

  • Hello and thanks for your post,

    I am sorry to hear that you have been waiting so long for your biopsy and I can only imagine how frustrating this must be for you.

    I am afraid that we can't diagnose you but as you have probably read vulval cancer is a rare cancer particularly before the menopause. It can sometimes take a while for the steroids to get on top of lichen sclerosus. I do suggest that you get back in touch with your GP as you still have not got a date for your biopsy. The NHS have produced some information about this condition which you may find helpful to read here

    I would try and avoid the internet which is so general and will not provide the answers that you are looking for. You may find answers from other members of the forum but do remember that everyone's situation is different.

    I do hope that you find out more about your situation soon.

    All the Best,

    Catherine

Reply

  • Hello and thanks for your post,

    I am sorry to hear that you have been waiting so long for your biopsy and I can only imagine how frustrating this must be for you.

    I am afraid that we can't diagnose you but as you have probably read vulval cancer is a rare cancer particularly before the menopause. It can sometimes take a while for the steroids to get on top of lichen sclerosus. I do suggest that you get back in touch with your GP as you still have not got a date for your biopsy. The NHS have produced some information about this condition which you may find helpful to read here

    I would try and avoid the internet which is so general and will not provide the answers that you are looking for. You may find answers from other members of the forum but do remember that everyone's situation is different.

    I do hope that you find out more about your situation soon.

    All the Best,

    Catherine

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