Experience of oncotype test

I'm new to the forum and have a question on the oncotype test. My daughter had a mastectomy on 10 December and one lymph node was found to have cells. She is hormone+, her2-  we had decided to self fund the Oncotype test however we are now not clear if this is only for people with clear lymph nodes .....does anyone have the same diagnosis who has had the Oncotype test. The Oncologist is a bit dismissive of the test?

Parents
  • Hi 

    I have just done the same and paid for the Onco DX test as I have one positive node.

    I think originally it was done for node negative only , but is now used for up to three positive nodes.Apparently some trusts will fund if there are positive nodes , unfortunately mine didn't , though the Oncologist said he thinks it will be later this year.

    The test was suggested by him and when I asked what would he do , he said if it was his wife he would definately have the test done as it would save going through cgemotherapy if you know it won't be  effective so I went with his advise.

    I had my Onco DX results appointment today - unbelievably Fed Ex have lost the sample and it nver got to America so another sample has to be sent off again! Oncologist said he has never had this happen in ten years of ordering the test-just my luck 

    i still think its a good option xx

Reply
  • Hi 

    I have just done the same and paid for the Onco DX test as I have one positive node.

    I think originally it was done for node negative only , but is now used for up to three positive nodes.Apparently some trusts will fund if there are positive nodes , unfortunately mine didn't , though the Oncologist said he thinks it will be later this year.

    The test was suggested by him and when I asked what would he do , he said if it was his wife he would definately have the test done as it would save going through cgemotherapy if you know it won't be  effective so I went with his advise.

    I had my Onco DX results appointment today - unbelievably Fed Ex have lost the sample and it nver got to America so another sample has to be sent off again! Oncologist said he has never had this happen in ten years of ordering the test-just my luck 

    i still think its a good option xx

Children
No Data