Hey, this is what they said to me too, I was aprehemsive about how they can tell just by feeling it but they have lots of experience and warning signs to feel out for, so I would try take some reassurance from it. I also got bloods done as I was anxious, which came back fine, and a chest x ray which came back okay, but as the lumps are still there I've been booked in for an ENT appointment. I wouldn't of had all this if I didn't keep on at them so if you do think it's not right insist on further tests x

hey, thanks for the reply it does help, i do feel a bit more confident i just don't want to get my hopes up and then my blood come back abnormal, but i shall push for tests if they don't go away but was told they can take 6/7 weeks to go down anyway? so not sure x

Yeah they told me to wait 4 weeks and see, hopefully yours will go down, stress and anxiety don't help at all, I know it's impossible not be worried in this situation but try not to think of the worst, as me crying every night probably hasn't helped mine at all haha x

oh tell me about it, my poor boyfriend has had a nightmare with me crying everyday and being convinced i'm going to die! hopefully everything will be fine for all of us and we can chill haha, keep us posted x

OMG are we the same person?? 

I am really struggling with trying to get my GP to take me seriously and they keep fobbing me off with a H Pylori test which I have to come off Lansoprazole for 15 days before I can do that. My problem is  I don't think I can wait 15 days as I'm struggling to swallow and it feels like food gets lodged in my esophogus. I'm in a dark state of mind atm. How did you manage to push for the tests? Should I call 111 or just go straight to a walk in centre? 

Hope all you other ladies are well. An update would be great x

Hi,

I had an ultrasound which looked fine so no more can be done, obviously I'm greatful the ultrasound was good but I'm still having other symptoms so worrying still

One of my symptoms was neck pain which got bad one weekend and called 111 who then booked me in at the urgent care centre, I think if you called and explained you were struggling to swallow they would definitely see you quickly, however with me it was nothing serious that needed urgent attention so just had to go home and wait for my upcoming appointments x

Hey,

oh I am sooo sorry to hear you are going through this! It's honestly so awful. 
Have you found that you've had acid reflux? Or it gets worse with certain foods or anything?? 
 

It's honestly took me months to get blood tests done and finally the Ultrasound - I have lymph nodes with reactive features so not looking cancerous thank god. But as for the inside of my throat I have no idea, it's still hard to swallow and it's tight and uncomfortable. But I just have to keep pushing through. I've just been really stern with my doctor and made it clear that I wasn't going to go home without some answers or tests, I just kept telling him about the lumps and the feeling of not being able to swallow etc. I've had soo many blood tests now and I have a phone call with an ENT specialist next Wednesday but they won't let me come in yet until they have more information. It's just so hard at the moment doctors are obviously reluctant to look in throats and stuff because of Covid. 
I found calling 111 really helpful and they ended up sending my details to a doctor in a walk in centre who then sent a letter to my GP saying I need an immediate referral to ENT. So that kind of worked. I would say going to walk in clinic isn't helpful, they really only deal with things they can give you medication for... just keep calling your doctor - tell them it's becoming serious and affecting your mental health etc and request more blood tests or an ultrasound? 
 

I hope this helps a little, at least to know you are not alone. I'm still very much going through this all and it's a challenge everyday but just stay positive, it could be you've had bad acid reflux that has irritated your throat or you've got an infection. But definitely try and get some for tests done and don't walk out of the doctors without feeling like they have done all they can! 
 

message me if you need more help or just to talk to someone about it all x

unfortunately blood tests came back and apparently i have to have another as they may indicate viral infection or something different, so back to square one with worrying and constantly crying! 

another update ahah, second blood test came back normal! thank god! now been told to just keep an eye on it but leave it alone for a couple of weeks and if it's still there or i'm still worried to call back and they'll order me a scan

Hey everyone! 
 

Hope you're all doing well. This conversation has been really helpful whilst I've been going through my process. Basically I found lumps in my neck end of December. Waited until Feb to see if they went down which they didn't. After a few appointments and blood tests coming back fine my lymph node to the right of my collarbone got really big and filled my clavicle. Then within 2 weeks I was referred to haematology at the hospital where I was told it probably isn't cancer. Had chest  x Ray & more bloods just to be safe & then had ultrasound biopsy 2 days later. During this the consultant told me he'd put money on it being lymphoma which was a big shock. Yesterday after waiting 4 days for results my original consultant rung me & told me the biopsy didn't show them enough so she's sending me for an urgent app PET scan 'to see what's going on' lol. Now I'm super anxious as you can imagine and waiting for a call from the cancer hospital to book me in. Up until now I've had no symptoms other than the neck lumps and neck ache. 
 

On a positive note I'm super impressed with the speed of everything even if the order of tests etc is a little different to normal. Just bracing myself for a lymphoma diagnosis now ! Didn't think I'd be going through this at 28 lol! Talk about inconvenient! Hopefully I'll get the scan this week!

All the best,

Scott